Perspectives of telemedicine-based services among family caregivers of patients with end-of-life cancer: a qualitative study in mainland China

• Published in: BMC palliative care 2024-01, Vol.23 (1), p.16-16, Article 16
• Main Authors: Guo, Junchen, Xu, Xianghua, Liu, Chaoyi, Wang, Ying, Chen, Yongyi
• Format: Article
• Language: English
• Subjects: Beliefs, opinions and attitudes; Cancer; Cancer patients; Care and treatment; Caregivers; Caregivers - psychology; Consent; Data collection; Death; End of life; Family - psychology; Family caregiver; Health care; Health care industry; Home care; Hospitals; Humans; International economic relations; Medical personnel; Methods; Neoplasms - therapy; Oncology, Experimental; Palliative care; Palliative Care - methods; Palliative treatment; Pandemics; Patients; Professional ethics; Professionals; Qualitative Research; Qualitative study; Symptom management; Telemedicine; Terminal care; Terminally ill persons
• ISSN: 1472-684X; 1472-684X
• DOI: 10.1186/s12904-024-01347-0

Despite being driven by a strong sense of duty and familial obligation, providing care for patients nearing the end of life poses challenges for family caregivers. Telemedicine has rapidly gained traction as a transformative approach to healthcare delivery, offering an array of benefits that could be particularly valuable in end-of-life care. However, research on the perspectives of telemedicine-based services among family caregivers of patients with end-of-life cancer is limited. Therefore, this study aims to explore the perspectives and preferences of telemedicine-based services among family caregivers of patients with end-of-life cancer and provide a framework for developing and executing a tailored telemedicine-based end-of-life care program that addresses the unique needs of family caregivers in mainland China. A descriptive phenomenological approach was used. Family caregivers were selected using purposive sampling at a tertiary cancer hospital. One-on-one semi-structured interviews were conducted with the participants from November to December 2022. Colaizz's method was used to analyze the interviews. Fourteen participants participated in interviews. Three themes and ten subthemes were identified: motivation to receive telemedicine services (relief from the burden of home care; access to professional health care services), supportive care needs for telemedicine services (support for symptom management; negative emotional adjustment; death education; daily life care guidance), and functional expectations of telemedicine service platforms (ease of use; real-time online guidance and response; personalized automatic reminder; targeted matching push of health knowledge). Family caregivers expressed interest in telemedicine-based services and identified various care needs before receiving telemedicine services. The findings of this study can help policymakers and healthcare providers develop more effective and culturally appropriate telemedicine-based service programs that can better support family caregivers of end-of-life cancer patients.