Family experiences in discovering Autism Spectrum Disorder: implications for family nursing

to describe the family's experience in the process of discovering the diagnosis and initiation of treatment of children with Autism Spectrum Disorder. this qualitative and descriptive study interviewed nine relatives of eight children on autism spectrum. They were inserted in health services, p...

Full description

Saved in:
Bibliographic Details
Published in:Revista Brasileira de Enfermagem 2020, Vol.73 (s6), p.e20190489-e20190489
Main Authors: Bonfim, Tassia de Arruda, Giacon-Arruda, Bianca Cristina Ciccone, Hermes-Uliana, Catchia, Galera, Sueli Aparecida Frari, Marcheti, Maria Angélica
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adult
Autism Spectrum Disorder
Autism Spectrum Disorder - diagnosis
Autism Spectrum Disorder - psychology
Child
Diagnosis
Family
Family - psychology
Family Nursing
Humans
Interviews as Topic
NURSING
Parents - psychology
Qualitative Research
Schools
Social Support
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:to describe the family's experience in the process of discovering the diagnosis and initiation of treatment of children with Autism Spectrum Disorder. this qualitative and descriptive study interviewed nine relatives of eight children on autism spectrum. They were inserted in health services, public education, and Association of Parents and Friends of The Exceptional of cities in the countryside of the Center-West. Data were collected through open interviews from July to September 2017. Data was submitted to thematic analysis. at the beginning, the family was difficult to perceive the first atypical signs presented by the children. Families experience situations of vulnerability, since support networks are insufficient. The school played a significant role in recognizing unexpected behaviors. support, offered by nurses, health professionals, school and social support devices, is important to family and children in this trajectory.
ISSN:0034-7167
1984-0446
1984-0446
DOI:10.1590/0034-7167-2019-0489