A patient perspective on information provision during the care path of Lentigo Maligna

Patients sometimes experience complex diagnostic and treatment procedures. During these processes, they need to rely on the information provided by the care providers. In particular, if they would like to play an active role in the shared decision-making process, it is important that this informatio...

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Bibliographic Details
Published in:Patient experience journal 2022-11, Vol.9 (3), p.173-179
Main Authors: Ter Meer, Louis P., de Mul, Marleen, Hazelzet, Jan, van Eijk, Clemens
Format: Article
Language:English
Subjects:
breuninger
emr
flap reconstruction
lentigo maligna
patient experience
patient portal
phr
shared decision making
Online Access:Get full text
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Summary:Patients sometimes experience complex diagnostic and treatment procedures. During these processes, they need to rely on the information provided by the care providers. In particular, if they would like to play an active role in the shared decision-making process, it is important that this information is accessible, complete and understandable. A patient with Lentigo Maligna on the nose has been followed during the process of diagnosis, shared decision-making and treatment. Using the autoethnographical methodology, it was evaluated which sources of information available to the patient contributed to a better understanding, a more active role in the treatment process and a positive experience. Possible improvements are suggested. Experience Framework This article is associated with the Quality & Clinical Excellence lens of The Beryl Institute Experience Framework ( https://www.theberylinstitute.org/ExperienceFramework ). Access other PXJ articles related to this lens. Access other resources related to this lens.
ISSN:2372-0247
2372-0247
DOI:10.35680/2372-0247.1602