Supporting carers to improve patient safety and maintain their well-being in transitions from mental health hospitals to the community: A prioritisation nominal group technique

• Published in: Health expectations : an international journal of public participation in health care and health policy 2023-10, Vol.26 (5), p.2064-2074
• Main Authors: McMullen, Sarah, Panagioti, Maria, Planner, Claire, Giles, Sally, Angelakis, Ioannis, Keers, Richard N, Robinson, Catherine, Fu, Yu, Johnson, Judith, Tyler, Natasha
• Format: Article
• Language: English
• Subjects: Academic staff; care transitions; Caregivers; carers; Co-design; Community hospitals; Data; Data collection; Decision making; Discharge; Education; Educational systems; Experts; Health education; Health services; Hospitalization; Hospitals; Illnesses; inpatient services; Intervention; Liaison; Loneliness; Mental disorders; Mental health; Mental health care; Mental health services; Nominal group technique; Ordination; Original; Patient safety; Patients; Primary care; Prioritizing; Professionals; Public health; Qualitative analysis; Safety; Social interactions; Social services; Social support; Stakeholders; Well being; Workshops
• ISSN: 1369-6513; 1369-7625
• DOI: 10.1111/hex.13813

Carers of people with mental illness may face distinct challenges, including navigating fragmented health and social services during discharge from mental health hospitals. Currently, limited examples of interventions that support carers of people with mental illness in improving patient safety during transitions of care exist. We aimed to identify problems and solutions to inform future carer-led discharge interventions, which is imperative for ensuring patient safety and the well-being of carers. The nominal group technique was used which combines both qualitative and quantitative data collection methods in four distinct phases: (1) problem identification, (2) solution generation, (3) decision making and (4) prioritisation. The aim was to combine expertise from different stakeholder groups (patients, carers and academics with expertise in primary/secondary care, social care or public health) to identify problems and generate solutions. Twenty-eight participants generated potential solutions that were grouped into four themes. The most acceptable solution for each was as follows: (1) 'Carer Involvement and Improving Carer Experience' a dedicated family liaison worker, (2) 'Patient Wellness and Education' adapting and implementing existing approaches to help implement the patient care plan, (3) 'Carer Wellness and Education' peer/social support interventions for carers and (4) 'Policy and System Improvements' understanding the co-ordination of care. The stakeholder group concurred that the transition from mental health hospitals to the community is a distressing period, where patients and carers are particularly vulnerable to safety and well-being risks. We identified numerous feasible/acceptable solutions to enable carers to improve patient safety and maintain their own mental wellbeing. Patient and public contributors were represented in the workshop and the focus of the workshop was to identify the problems they faced and co-design potential solutions. Patient and public contributors were involved in the funding application and study design.