Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)

This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged

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Bibliographic Details
Published in:Research and practice in thrombosis and haemostasis 2021-05, Vol.5 (4), p.e12519-n/a, Article e12519
Main Authors: Dover, Saunya, Young, Nancy L., Blanchette, Victor S., Klaassen, Robert J., Chan, Anthony K., Wakefield, Cindy, Bouskill, Vanessa, Carcao, Manuel, Belletrutti, Mark, Bruce, Aisha A.K., Price, Victoria E.
Format: Article
Language:English
Subjects:
Caregivers
Children & youth
Chronic illnesses
Disease prevention
Families & family life
Focus groups
Hemophilia
Original
Parents & parenting
Quality of life
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Description
Summary:This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged
ISSN:2475-0379
2475-0379
DOI:10.1002/rth2.12519