The Danish National Patient Registry: a review of content, data quality, and research potential

The Danish National Patient Registry (DNPR) is one of the world's oldest nationwide hospital registries and is used extensively for research. Many studies have validated algorithms for identifying health events in the DNPR, but the reports are fragmented and no overview exists. To review the co...

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Bibliographic Details
Published in:Clinical epidemiology 2015-01, Vol.7 (default), p.449-490
Main Authors: Schmidt, Morten, Schmidt, Sigrun Alba Johannesdottir, Sandegaard, Jakob Lynge, Ehrenstein, Vera, Pedersen, Lars, Sørensen, Henrik Toft
Format: Article
Language:English
Subjects:
Algorithms
Analysis
Cancer therapies
Cardiology
Chronic obstructive pulmonary disease
Clinical medicine
Data collection
Epidemiology
Health care policy
Heart attacks
Hepatitis
Homeopathy
Hospitals
Materia medica and therapeutics
NMR
Nuclear magnetic resonance
Patients
Population
Review
Therapeutics
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Summary:The Danish National Patient Registry (DNPR) is one of the world's oldest nationwide hospital registries and is used extensively for research. Many studies have validated algorithms for identifying health events in the DNPR, but the reports are fragmented and no overview exists. To review the content, data quality, and research potential of the DNPR. We examined the setting, history, aims, content, and classification systems of the DNPR. We searched PubMed and the Danish Medical Journal to create a bibliography of validation studies. We included also studies that were referenced in retrieved papers or known to us beforehand. Methodological considerations related to DNPR data were reviewed. During 1977-2012, the DNPR registered 8,085,603 persons, accounting for 7,268,857 inpatient, 5,953,405 outpatient, and 5,097,300 emergency department contacts. The DNPR provides nationwide longitudinal registration of detailed administrative and clinical data. It has recorded information on all patients discharged from Danish nonpsychiatric hospitals since 1977 and on psychiatric inpatients and emergency department and outpatient specialty clinic contacts since 1995. For each patient contact, one primary and optional secondary diagnoses are recorded according to the International Classification of Diseases. The DNPR provides a data source to identify diseases, examinations, certain in-hospital medical treatments, and surgical procedures. Long-term temporal trends in hospitalization and treatment rates can be studied. The positive predictive values of diseases and treatments vary widely (
ISSN:1179-1349
1179-1349
DOI:10.2147/clep.s91125