Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review

Conventional consent practices face ethical challenges in continuously evolving digital health environments due to their static, one-time nature. Dynamic consent offers a promising solution, providing adaptability and flexibility to address these ethical concerns. However, due to the immaturity of t...

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Published in:BMC medical ethics 2023-12, Vol.24 (1), p.107-107, Article 107
Main Authors: Lee, Ah Ra, Koo, Dongjun, Kim, Il Kon, Lee, Eunjoo, Kim, Hyun Ho, Yoo, Sooyoung, Kim, Jeong-Hyun, Choi, Eun Kyung, Lee, Ho-Young
Format: Article
Language:English
Subjects:
Blockchain
Communication
Consent systems
Data sovereignty
Digital health
Dynamic consent
E-health
Ecosystem
Ethical aspects
Ethics
Humans
Information sources
Informed Consent
Informed consent (Medical law)
International organizations
Keywords
Medical research
Online data bases
Personal health
Privacy
Technology
Trends
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creator Lee, Ah Ra
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description Conventional consent practices face ethical challenges in continuously evolving digital health environments due to their static, one-time nature. Dynamic consent offers a promising solution, providing adaptability and flexibility to address these ethical concerns. However, due to the immaturity of the concept and accompanying technology, dynamic consent has not yet been widely used in practice. This study aims to identify the facilitators of and barriers to adopting dynamic consent in real-world scenarios. This scoping review, conducted in December 2022, adhered to the PRISMA Extension for Scoping Reviews guidelines, focusing on dynamic consent within the health domain. A comprehensive search across Web of Science, PubMed, and Scopus yielded 22 selected articles based on predefined inclusion and exclusion criteria. The facilitators for the adoption of dynamic consent in digital health ecosystems were the provision of multiple consent modalities, personalized alternatives, continuous communication, and the dissemination of up-to-date information. Nevertheless, several barriers, such as consent fatigue, the digital divide, complexities in system implementation, and privacy and security concerns, needed to be addressed. This study also investigated current technological advancements and suggested considerations for further research aimed at resolving the remaining challenges surrounding dynamic consent. Dynamic consent emerges as an ethically advantageous method for digital health ecosystems, driven by its adaptability and support for continuous, two-way communication between data subjects and consumers. Ethical implementation in real-world settings requires the development of a robust technical framework capable of accommodating the diverse needs of stakeholders, thereby ensuring ethical integrity and data privacy in the evolving digital health landscape.
doi_str_mv 10.1186/s12910-023-00988-9
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subjects Blockchain
Communication
Consent systems
Data sovereignty
Digital health
Dynamic consent
E-health
Ecosystem
Ethical aspects
Ethics
Humans
Information sources
Informed Consent
Informed consent (Medical law)
International organizations
Keywords
Medical research
Online data bases
Personal health
Privacy
Technology
Trends
title Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review
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