Evaluating the Linguistic Appropriateness and Cultural Sensitivity of a Self-Report System for Spanish-Speaking Patients with Cancer

Spanish speakers in the United States encounter numerous communication barriers during cancer treatment. Communication-focused interventions may help Spanish speakers communicate better with healthcare providers and manage symptoms and quality of life issues (SQOL). For this study, we developed a Sp...

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Bibliographic Details
Published in:Nursing Research and Practice 2014-01, Vol.2014 (2014), p.244-256
Main Authors: Berry, Donna L., Sanchez Varela, Veronica, Gonzalez, Laura, Melendez, Maribel, Halpenny, Barbara, Tofthagen, Cindy, Negrón, Rosalyn
Format: Article
Language:English
Subjects:
Cancer therapies
Caregivers
Clinical trials
Communication
Culture
Health care
Hispanic Americans
Internet
Medical screening
Oncology
Patients
Self report
Spanish language
Technology adoption
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Summary:Spanish speakers in the United States encounter numerous communication barriers during cancer treatment. Communication-focused interventions may help Spanish speakers communicate better with healthcare providers and manage symptoms and quality of life issues (SQOL). For this study, we developed a Spanish version of the electronic self-report assessment for cancer (ESRA-C), a web-based program that helps people with cancer report, track, and manage cancer-related SQOL. Four methods were used to evaluate the Spanish version. Focus groups and cognitive interviews were conducted with 51 Spanish-speaking individuals to elicit feedback. Readability was assessed using the Fry readability formula. The cultural sensitivity assessment tool was applied by three bilingual, bicultural reviewers. Revisions were made to personalize the introduction using a patient story and photos and to simplify language. Focus group participants endorsed changes to the program in a second round of focus groups. Cultural sensitivity of the program was scored unacceptable (x¯=3.0) for audiovisual material and acceptable (x¯=3.0) for written material. Fry reading levels ranged from 4th to 10th grade. Findings from this study provide several next steps to refine ESRA-C for Spanish speakers with cancer.
ISSN:2090-1429
2090-1437
DOI:10.1155/2014/702683