Living with pain: the experience of children and adolescents in palliative care

A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget's theory of cognitive devel...

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Bibliographic Details
Published in:Revista da Escola de Enfermagem da U S P 2014-08, Vol.48 Spec No (spe), p.67-73
Main Authors: Borghi, Camila Amaral, Rossato, Lisabelle Mariano, Damião, Elaine Buchhorn Cintra, Guedes, Danila Maria Batista, Silva, Ellen Maria Reimberg da, Barbosa, Silvia Maria de Macedo, Polastrini, Rita Tiziana
Format: Article
Language:English
Subjects:
Adolescente
Autoimagem
Cuidados paliativos
Enfermería pediátrica
Manejo del dolor
Niño
NURSING
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Summary:A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget's theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses' understanding that effective management of pain in children is essential for a normal life and less suffering.
ISSN:0080-6234
1980-220X
0080-6234
DOI:10.1590/S0080-623420140000600010