Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?

Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples' organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisati...

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Bibliographic Details
Published in:Scandinavian journal of disability research : SJDR 2020-11, Vol.22 (1), p.285-295
Main Authors: Pearson, Charlotte, Brunner, Richard, Porter, Tom, Watson, Nick
Format: Article
Language:English
Subjects:
Activism
Activists
Cash transactions
COVID-19
Customization
direct payments
Disability
Disabled persons
Grass roots movement
Interviews
Legislation
Local government
People with disabilities
personalisation
Roles
social care
Sweden
United Kingdom
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Summary:Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples' organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation across the UK has seen significant divergence in how governments have developed their own responses, but in each country the DPOs' role and impact has shifted from campaigning and promoting the voices of disabled people to a more muted focus on service provision and limited policy engagement. This article draws on a series of interviews with DPOs and leading disabled activists. It highlights concerns raised related to themes around austerity, changing relationships with local government and the role of co-production in developing policy. We conclude the article by discussing the future directions for personalisation and developments in light of the COVID-19 pandemic. Keywords: personalisation, social care, direct payments, disability
ISSN:1745-3011
1501-7419
1745-3011
DOI:10.16993/sjdr.742