Representation in participatory healthcare decision‐making

In a fascinating paper, Holetzek and Holmberg emphasize the importance of representation when conducting patient and public involvement (PPI) in research. 1 We therefore reviewed our recent PPI work and considered whether our lay participants met their criteria in terms of responsiveness, characteri...

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Bibliographic Details
Published in:Health expectations : an international journal of public participation in health care and health policy 2022-08, Vol.25 (4), p.1190-1191
Main Authors: Moore, Emma L., Chandrasekaran, Lakshmi, Sheldon‐Wilson, Holly, Scholtz, Janneke
Format: Article
Language:English
Subjects:
Antibiotics
Bacterial vaginosis
Colleges & universities
Continuing education
Data integrity
Decision making
Feasibility
Feasibility studies
Health care
Lactoferrin
Letter to the Editor
Milk
Patient information
Patients
Public involvement
Side effects
Vagina
Vaginal discharge
Vaginosis
Women
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Summary:In a fascinating paper, Holetzek and Holmberg emphasize the importance of representation when conducting patient and public involvement (PPI) in research. 1 We therefore reviewed our recent PPI work and considered whether our lay participants met their criteria in terms of responsiveness, characteristics and skills. PPI allows the incorporation of the unique perspectives that participants bring to research, which are crucial in the design of many studies. 2 In December 2021, we visited a London technical/further education college to explore the opinions of female students on the proposed patient literature for a feasibility study of using vaginal lactoferrin (a prebiotic protein derived from milk) instead of antibiotics/antifungals to treat bacterial vaginosis (BV) and thrush. 3,4 Our previous online survey of 82 women (mean age 22) found that 84% would be happy to try vaginal lactoferrin as a natural alternative to oral treatment for vaginal discharge. [...]of our PPI work, we have improved the patient information sheet by adding more information on data protection and on possible side effects of lactoferrin.
ISSN:1369-6513
1369-7625
DOI:10.1111/hex.13521