Assessment of family environment and needs of families who have children with cerebral palsy/Serebral palsili cocugu olan ailelerin aile ortamlarinin degerlendirilmesi ve gereksinimlerinin belirlenmesi

• Published in: Türkiye fiziksel tip ve rehabilitasyon dergisi 2015-12, Vol.61 (4), p.320
• Main Authors: Saygi, Evrim Karadag, Giray, Esra, Cersit, Hulya Peynirci, Ulutatar, Firat, Aydin, Resa
• Format: Article
• Language: English
• Subjects: Analysis; Care and treatment; Cerebral palsy; Children; Diagnosis; Family assessment; Health aspects; Risk factors
• ISSN: 1302-0234
• DOI: 10.5152/tftrd.2015.70745

Objective: The aim of the study is to identify family needs and to assess the family environment of children with cerebral palsy (CP). Material and Methods: Participants were the primary caregivers of 103 children between the age of 4 and 12 years with a diagnosis of CP. The parents of the children completed the Family Environment Scale (FES) and the modified version of Family Needs Survey (FNS). The Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System (MACS) levels of children were determined. The medical history of the participants accompanying disorders and characteristics of families are questioned. Results: According to the results of FNS, the most cited requirement was need for information (84.3%) and the least cited requirements were needs for babysitting while having a meeting (62.1%) and payment for childminders (74.8%). Neither the FES nor the FNS results was correlated to the GMFCS or MACS levels or accompanying disorders. Conclusion: Regardless of education level, parents reported need for information about their children's conditions and future services. If families are informed about their children's health condition and are aware of present or future resources, better outcomes will be seen. Understanding the needs of families who have children with CP and assessment of family characteristics and environment are important for family-centered services. Keywords: Cerebral palsy, family needs, family environment Amac: Serebral palsili (SP) cocuklarin ailelerinin gereksinimlerini belirlemek ve aile ortamlarini degerlendirmek. Gerec ve Yontemler: Katilimcilar, 4-12 yaslarinda 103 SP tanili hastanin primer bakim verenleriydi. SP'li cocuklarin ailelerine Aile Ortami Olcegi (Family Enviroment Scale, FES)'nin modifiye edilmis versiyonu ve Aile Gereksinimlerini Belirleme Araci (Family Needs Survey, FNS) uygulandi. SP'li olgularin Kaba Motor Fonksiyon Siniflama Sistemi (GMFCS)'ne gore motor aktivite duzeyleri ve El Becerileri Siniflandirma Sistemine (MACS) gore el fonksiyonlari degerlendirildi. Hastalarin tibbi ozgecmisleri, eslik eden bozukluklar ve aile karakteristikleri sorgulandi. Bulgular: Aile Gereksinimleri Olcegi sonuclarina gore ailelerin en fazla belirttigi gereksinim bilgi gereksinimi (%84,3), en az belirttigi gereksinim toplantiya katilmalari gerektigi zaman cocuklarini birakilabilecekleri yuva gereksinimi (%62,1) ve bakici ucreti icin para ihtiyaci (%74,8) olarak tespit edilmistir. FES ve FNS sonuclari