Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers

The aim of this study was to understand the impact of Dravet syndrome (DS) on patients with Dravet syndrome and their families, with a focus on the social and economic impact on both mothers and fathers. A French language on-line survey was distributed (October 2014–January 2015) for completion by c...

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Bibliographic Details
Published in:Epilepsy & behavior 2020-07, Vol.108, p.107094-107094, Article 107094
Main Authors: Nabbout, Rima, Dirani, Maya, Teng, Théo, Bianic, Florence, Martin, Monique, Holland, Rowena, Chemaly, Nicole, Coque, Nathalie
Format: Article
Language:English
Subjects:
Adolescent
Adult
Caregiver burden
Caregivers - psychology
Child
Child, Preschool
Cost of Illness
Dravet syndrome
Epilepsies, Myoclonic - epidemiology
Epilepsies, Myoclonic - psychology
Epilepsies, Myoclonic - therapy
Female
France - epidemiology
Humans
Life Sciences
Male
Middle Aged
Mothers - psychology
Mothers versus fathers
Survey
Surveys and Questionnaires
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Summary:The aim of this study was to understand the impact of Dravet syndrome (DS) on patients with Dravet syndrome and their families, with a focus on the social and economic impact on both mothers and fathers. A French language on-line survey was distributed (October 2014–January 2015) for completion by caregivers of patients aged 2 per week for 16.1% of patients, 1–8 per month for 55.2% and 
ISSN:1525-5050
1525-5069
DOI:10.1016/j.yebeh.2020.107094