Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative

• Published in: Joint, bone, spine : revue du rhumatisme bone, spine : revue du rhumatisme, 2024-09, Vol.91 (5), p.105733, Article 105733
• Main Authors: Ruyssen-Witrand, Adeline, Caillet-Portillo, Damien, Najm, Aurélie, Fogel, Olivier, Baillet, Athan, Claudepierre, Pascal, Conort, Orenella, Dernis, Emmanuelle, Fayet, Françoise, Gossec, Laure, Goupille, Philippe, Hudry, Christophe, Letarouilly, Jean-Guillaume, Lukas, Cédric, Marotte, Hubert, Molto, Anna, Pouplin, Sophie, Senbel, Eric, Sordet, Christelle, Tournadre, Anne, Truchetet, Marie-Elise, Wendling, Daniel, Dougados, Maxime
• Format: Article
• Language: English
• Subjects: Comorbidities; Disease assessment; E-health; Life Sciences; Quality of life; Spondyloarthritis
• ISSN: 1297-319X; 1778-7254; 1778-7254
• DOI: 10.1016/j.jbspin.2024.105733

•An annual review of patients with axial spondyloarthritis encompassing disease activity, severity, comorbidities, employment, psychological factors, and lifestyle is recommended.•The specific content of this annual review has never been proposed.•This initiative provided a reporting framework including all components needing to be assessed during this review.•This document was obtained after a literature search and an expert consensus-driven approach. National and international scientific societies advocate for a regular, systematic, and standardized global evaluation of axial spondyloarthritis (axSpA) patients. However, there are no recommendations specifying the content of this global evaluation. This initiative aimed to propose a standardized reporting framework, using evidence-based and consensus approaches, to collect data on all domains of axSpA. A literature review and consensus process involved a steering committee and an expert panel of 37 rheumatologists and health professionals. The first steering committee took place in March 2022 and identified the main domains for inclusion in the standardized report. A hierarchical literature review was conducted to identify items within these domains and tools for assessment. The items and tools for assessment were discussed and consensus was reached through a vote session during an expert meeting that took place in March 2023. The steering committee identified four main domains to include in the standardized reporting framework: disease assessment, comorbidities, lifestyle, and quality of life. Items and tools for assessment were adopted after the expert meeting. Additionally, recommendations regarding digital tools (websites, apps, social media) were provided. This initiative led to a consensus, based on evidence and expertise, on a reporting framework for use during periodic systematic global evaluations of axSpa in daily practice.