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Pravo na palijativnu skrb za djecu u Republici Hrvatskoj

Palliative care for children means active, complete care on physical, psychological, social and spiritual levels, and it includes collaboration and active work with the family. Palliative care for children lasts during the period of illness and continues after the death of the child in the form of e...

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Bibliographic Details
Published in:Hrvatska revija za rehabilitacijska istraživanja 2020-01, Vol.55 (2), p.82-91
Main Authors: Milić Babić, Marina, Hranj, Marina
Format: Article
Language:hrv ; eng
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Summary:Palliative care for children means active, complete care on physical, psychological, social and spiritual levels, and it includes collaboration and active work with the family. Palliative care for children lasts during the period of illness and continues after the death of the child in the form of expert assistance to the family in their grief. Such care follows the principles of individual, holistic, transdisciplinary and biopsychosocial-spiritual approaches that come together in promoting the quality of life of a child and his or her family. Numerous legal sources are the starting point for defining palliative care for children as a fundamental human right to health care, as well as for defining basic actions within this fundamental right. The right to palliative care includes rights from different systems, and collaboration and linking of different disciplines are needed in order to meet the needs of the child and his family. The aim of this paper is to present crucial knowledge in the field of palliative care for children and to examine how this right is implemented and legally regulated in the Republic of Croatia. Palijativna skrb za djecu aktivna je i potpuna briga za dijete koja djeluje na tjelesnoj, psihičkoj, socijalnoj i duhovnoj razini, a također uključuje i suradnju te aktivan rad s obitelji djeteta. Palijativna skrb za djecu svojim trajanjem pokriva razdoblje bolesti, ali i razdoblje nakon smrti djeteta u obliku stručne pomoći obitelji u tugovanju. Ovakva skrb počiva na načelima više teorijskih sadržaja kao što su individualni pristup, holistički pristup, transdisciplinarni pristup, biopsihosocijalno-duhovni model koji se objedinjuju u promicanju kvalitete života djeteta i njegove obitelji. Postoje brojni pravni izvori koji su polazište definiranja palijativne skrbi za djecu kao temeljnog ljudskog prava na zdravstvenu zaštitu. Pravo na palijativnu skrb uključuje prava iz različitih sustava što iziskuje suradnju i povezivanje različitih disciplina s ciljem zadovoljavanja specifičnih potreba djeteta i njegove obitelji. Cilj je rada prikazivanje ključnih spoznaja iz područja palijativne skrb za djecu, upoznavanje s pravnom regulacijom navedenog prava u Republici Hrvatskoj te samim načinima ostvarivanja svih elemenata koji čine pravo na palijativnu skrb za djecu.
ISSN:1331-3010
1848-7734
DOI:10.31299/hrri.55.2.7