근거중심 보건의료의 시행을 위한 빅데이터 활용

• Published in: Taehan Ŭisa Hyŏphoe chi 2014, 57(5), 652, pp.413-418
• Main Authors: 고민정, 임태환
• Format: Article
• Language: Korean
• Subjects: 기타의약학
• ISSN: 1975-8456
• DOI: 10.5124/jkma.2014.57.5.413

Data pools and their integration are fueling the big data revolution in health care with the recent advances ininformation technology. Korea has shown tremendous promise in the utilization of big data for its advanced technology,computerized health data, and unique identifiers. However, the Personal Information Protection Act (PIPA) severelylimits access to personal identifiers, which has discouraged the use of health data even for the public good. In contrast,western countries have focused on research without the use of identifiers, which has augmented the use of theavailable data while maintaining and respecting privacy; they have allowed some exemptions of informed consent andutilized limited data sets, which have the identifiers removed. The amount of research output has increased rapidlyand an in-depth understanding of cancer has been made possible based on the linkage of Surveillance, Epidemiology,and End Results (SEER) and Medicare in the US. More than 700 projects covering a wide range of medical areashave been conducted, which has led to changes in clinical practice based on the Western Australian Data LinkageSystem. Although rare, evidence-driven decisions based on data linkage have been found in some cases in Korea; theadoption of prostate cancer screening as a national screening program was suspended as its cost-effectiveness hasnot been verified on the basis of data linkage by the National Evidence-Based Healthcare Collaboration Agency. Forthe active use of health data, there is an urgent need to amend PIPA, prepare regulations for data analysis, and fostercollaboration among data-related institutions. Great projects based on data linkage will guarantee the world’s leadingresearch output and will be major sources for moving forward to success. KCI Citation Count: 0