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Caregivers in China: knowledge of mild cognitive impairment
This study aimed to examine the experience and knowledge of mild cognitive impairment (MCI) among Chinese family caregivers of individuals with MCI. The sample was recruited from memory clinics in Zhongnan Hospital in Wuhan, China. In-depth semi-structured interviews were used. Thirteen family membe...
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Published in: | PloS one 2013-01, Vol.8 (1), p.e53928 |
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description | This study aimed to examine the experience and knowledge of mild cognitive impairment (MCI) among Chinese family caregivers of individuals with MCI. The sample was recruited from memory clinics in Zhongnan Hospital in Wuhan, China. In-depth semi-structured interviews were used. Thirteen family members of individuals diagnosed with MCI participated in the study. Data analysis revealed three themes: 1) initial recognition of cognitive decline; 2) experience of the diagnosis of MCI; 3) perception of cognitive decline as a normal part of aging. While family members recognized the serious consequences of memory loss (e.g. getting lost), they would typically not take their family members to see a doctor until something specific triggered their access to the medical care system. The Chinese traditional perception of dementia as part of normal aging may serve to lessen the stigma of individuals with MCI, while the term "laonian chidai" which literally translates to "stupid, demented elderly" may exacerbate the stigma associated with individuals with MCI. It is suggested that family members' worries may be relieved by improving their access to accurate knowledge of the disease, community-based and institutional care services, and culturally appropriately words are needed for MCI. |
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The sample was recruited from memory clinics in Zhongnan Hospital in Wuhan, China. In-depth semi-structured interviews were used. Thirteen family members of individuals diagnosed with MCI participated in the study. Data analysis revealed three themes: 1) initial recognition of cognitive decline; 2) experience of the diagnosis of MCI; 3) perception of cognitive decline as a normal part of aging. While family members recognized the serious consequences of memory loss (e.g. getting lost), they would typically not take their family members to see a doctor until something specific triggered their access to the medical care system. The Chinese traditional perception of dementia as part of normal aging may serve to lessen the stigma of individuals with MCI, while the term "laonian chidai" which literally translates to "stupid, demented elderly" may exacerbate the stigma associated with individuals with MCI. It is suggested that family members' worries may be relieved by improving their access to accurate knowledge of the disease, community-based and institutional care services, and culturally appropriately words are needed for MCI.</description><identifier>ISSN: 1932-6203</identifier><identifier>EISSN: 1932-6203</identifier><identifier>DOI: 10.1371/journal.pone.0053928</identifier><identifier>PMID: 23326541</identifier><language>eng</language><publisher>United States: Public Library of Science</publisher><subject>Adult ; Aged ; Aging ; Aging - psychology ; Alzheimer's disease ; Alzheimers disease ; Analysis ; Asian Americans ; Caregivers ; Caregivers - psychology ; China ; Cognitive ability ; Cognitive Dysfunction - physiopathology ; Cognitive Dysfunction - psychology ; Data analysis ; Data processing ; Dementia ; Dementia - physiopathology ; Dementia - psychology ; Dementia disorders ; Family - psychology ; Geriatrics ; Health aspects ; Humans ; Impairment ; Information management ; Interviews ; Knowledge ; Long term health care ; Male ; Medicine ; Memory ; Memory Disorders - physiopathology ; Memory Disorders - psychology ; Older people ; Perception ; Public health ; Social and Behavioral Sciences ; Studies</subject><ispartof>PloS one, 2013-01, Vol.8 (1), p.e53928</ispartof><rights>COPYRIGHT 2013 Public Library of Science</rights><rights>2013 Dai et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License: https://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2013 Dai et al 2013 Dai et al</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c692t-4fb507828b49cd07c3dc1d7da97227a4b03e74821faf9cb8e53666f7be9195093</citedby><cites>FETCH-LOGICAL-c692t-4fb507828b49cd07c3dc1d7da97227a4b03e74821faf9cb8e53666f7be9195093</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.proquest.com/docview/1289066023/fulltextPDF?pq-origsite=primo$$EPDF$$P50$$Gproquest$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.proquest.com/docview/1289066023?pq-origsite=primo$$EHTML$$P50$$Gproquest$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,885,25753,27924,27925,37012,37013,44590,53791,53793,75126</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23326541$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><contributor>Laks, Jerson</contributor><creatorcontrib>Dai, Baozhen</creatorcontrib><creatorcontrib>Mao, Zongfu</creatorcontrib><creatorcontrib>Mei, John</creatorcontrib><creatorcontrib>Levkoff, Sue</creatorcontrib><creatorcontrib>Wang, Huali</creatorcontrib><creatorcontrib>Pacheco, Misty</creatorcontrib><creatorcontrib>Wu, Bei</creatorcontrib><title>Caregivers in China: knowledge of mild cognitive impairment</title><title>PloS one</title><addtitle>PLoS One</addtitle><description>This study aimed to examine the experience and knowledge of mild cognitive impairment (MCI) among Chinese family caregivers of individuals with MCI. The sample was recruited from memory clinics in Zhongnan Hospital in Wuhan, China. In-depth semi-structured interviews were used. Thirteen family members of individuals diagnosed with MCI participated in the study. Data analysis revealed three themes: 1) initial recognition of cognitive decline; 2) experience of the diagnosis of MCI; 3) perception of cognitive decline as a normal part of aging. While family members recognized the serious consequences of memory loss (e.g. getting lost), they would typically not take their family members to see a doctor until something specific triggered their access to the medical care system. The Chinese traditional perception of dementia as part of normal aging may serve to lessen the stigma of individuals with MCI, while the term "laonian chidai" which literally translates to "stupid, demented elderly" may exacerbate the stigma associated with individuals with MCI. It is suggested that family members' worries may be relieved by improving their access to accurate knowledge of the disease, community-based and institutional care services, and culturally appropriately words are needed for MCI.</description><subject>Adult</subject><subject>Aged</subject><subject>Aging</subject><subject>Aging - psychology</subject><subject>Alzheimer's disease</subject><subject>Alzheimers disease</subject><subject>Analysis</subject><subject>Asian Americans</subject><subject>Caregivers</subject><subject>Caregivers - psychology</subject><subject>China</subject><subject>Cognitive ability</subject><subject>Cognitive Dysfunction - physiopathology</subject><subject>Cognitive Dysfunction - psychology</subject><subject>Data analysis</subject><subject>Data processing</subject><subject>Dementia</subject><subject>Dementia - physiopathology</subject><subject>Dementia - psychology</subject><subject>Dementia disorders</subject><subject>Family - psychology</subject><subject>Geriatrics</subject><subject>Health aspects</subject><subject>Humans</subject><subject>Impairment</subject><subject>Information management</subject><subject>Interviews</subject><subject>Knowledge</subject><subject>Long term health care</subject><subject>Male</subject><subject>Medicine</subject><subject>Memory</subject><subject>Memory Disorders - 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The sample was recruited from memory clinics in Zhongnan Hospital in Wuhan, China. In-depth semi-structured interviews were used. Thirteen family members of individuals diagnosed with MCI participated in the study. Data analysis revealed three themes: 1) initial recognition of cognitive decline; 2) experience of the diagnosis of MCI; 3) perception of cognitive decline as a normal part of aging. While family members recognized the serious consequences of memory loss (e.g. getting lost), they would typically not take their family members to see a doctor until something specific triggered their access to the medical care system. The Chinese traditional perception of dementia as part of normal aging may serve to lessen the stigma of individuals with MCI, while the term "laonian chidai" which literally translates to "stupid, demented elderly" may exacerbate the stigma associated with individuals with MCI. It is suggested that family members' worries may be relieved by improving their access to accurate knowledge of the disease, community-based and institutional care services, and culturally appropriately words are needed for MCI.</abstract><cop>United States</cop><pub>Public Library of Science</pub><pmid>23326541</pmid><doi>10.1371/journal.pone.0053928</doi><tpages>e53928</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Adult Aged Aging Aging - psychology Alzheimer's disease Alzheimers disease Analysis Asian Americans Caregivers Caregivers - psychology China Cognitive ability Cognitive Dysfunction - physiopathology Cognitive Dysfunction - psychology Data analysis Data processing Dementia Dementia - physiopathology Dementia - psychology Dementia disorders Family - psychology Geriatrics Health aspects Humans Impairment Information management Interviews Knowledge Long term health care Male Medicine Memory Memory Disorders - physiopathology Memory Disorders - psychology Older people Perception Public health Social and Behavioral Sciences Studies |
title | Caregivers in China: knowledge of mild cognitive impairment |
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