Ethical challenges of big data in public health

  Furthermore, this novel approach builds on the idea that information relevant to public health is now increasingly generated directly by the population through their use of online services, without their necessarily having engaged with the health care system [4, 5]. [...]if individuals take person...

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Bibliographic Details
Published in:PLoS computational biology 2015-02, Vol.11 (2), p.e1003904-e1003904
Main Authors: Vayena, Effy, Salathé, Marcel, Madoff, Lawrence C, Brownstein, John S
Format: Article
Language:English
Subjects:
Big data
Biomedical Research
Confidentiality - ethics
Datasets
Electronic Health Records - ethics
Epidemiology
Ethical aspects
Humans
Internet access
Medical ethics
Medical research
Population
Public health
Public Health - ethics
Social networks
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Summary:  Furthermore, this novel approach builds on the idea that information relevant to public health is now increasingly generated directly by the population through their use of online services, without their necessarily having engaged with the health care system [4, 5]. [...]if individuals take personal risks in order to report events of public health importance (i.e., a farmer reporting avian flu at risk of losing his flock), those risks should be mitigated by appropriate policies (e.g., compensation) that acknowledge the societal contribution and the local/personal costs.
ISSN:1553-7358
1553-734X
1553-7358
DOI:10.1371/journal.pcbi.1003904