Implementation of Patient-Centered Education for Chronic-Disease Management in Uganda: An Effectiveness Study

The majority of non-communicable disease related deaths occur in low- and middle-income countries. Patient-centered care is an essential component of chronic disease management in high income settings. To examine feasibility of implementation of a validated patient-centered education tool among pati...

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Bibliographic Details
Published in:PloS one 2016-11, Vol.11 (11), p.e0166411-e0166411
Main Authors: Siddharthan, Trishul, Rabin, Tracy, Canavan, Maureen E, Nassali, Faith, Kirchhoff, Phillip, Kalyesubula, Robert, Coca, Steven, Rastegar, Asghar, Knauf, Felix
Format: Article
Language:English
Subjects:
Acceptability
Adults
Analysis
Biology and Life Sciences
Cardiac patients
Cardiology
Chronic Disease - therapy
Chronic diseases
Chronic illnesses
Communicable diseases
Communication
Demography
Diagnostic tests
Disease control
Disease management
Education
Feasibility
Feasibility studies
Female
Follow-Up Studies
Health care
Health Education
Health sciences
Health services
Heart
Heart diseases
Heart failure
High income
Hospital patients
Hospitals
Humans
Income
Informatics
Intervention
Male
Management
Medical diagnosis
Medical personnel
Medical research
Medical treatment
Medicine
Medicine and Health Sciences
Nephrology
Outcome Assessment, Health Care
Patient Acceptance of Health Care
Patient care
Patient Satisfaction
Patient-Centered Care
Patients
People and Places
Physician-patient relations
Physicians
Public health
Qualitative research
Review boards
Social Sciences
Socio-economic aspects
Uganda
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Summary:The majority of non-communicable disease related deaths occur in low- and middle-income countries. Patient-centered care is an essential component of chronic disease management in high income settings. To examine feasibility of implementation of a validated patient-centered education tool among patients with heart failure in Uganda. Mixed-methods, prospective cohort. A private and public cardiology clinic in Mulago National Referral and Teaching Hospital, Kampala, Uganda. Adults with a primary diagnosis of heart failure. PocketDoktor Educational Booklets with patient-centered health education. The primary outcomes were the change in Patient Activation Measure (PAM-13), as well as the acceptability of the PocketDoktor intervention, and feasibility of implementing patient-centered education in outpatient clinical settings. Secondary outcomes included the change in satisfaction with overall clinical care and doctor-patient communication. A total of 105 participants were enrolled at two different clinics: the Mulago Outpatient Department (public) and the Uganda Heart Institute (private). 93 participants completed follow up at 3 months and were included in analysis. The primary analysis showed improved patient activation measure scores regarding disease-specific knowledge, treatment options and prevention of exacerbations among both groups (mean change 0.94 [SD = 1.01], 1.02 [SD = 1.15], and 0.92 [SD = 0.89] among private paying patients and 1.98 [SD = 0.98], 1.93 [SD = 1.02], and 1.45 [SD = 1.02] among public paying patients, p
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0166411