STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol

• Published in: PloS one 2022-11, Vol.17 (11), p.e0277936-e0277936
• Main Authors: van der Feltz-Cornelis, Christina M, Sweetman, Jennifer, Allsopp, Gail, Attree, Emily, Crooks, Michael G, Cuthbertson, Daniel J, Forshaw, Denise, Gabbay, Mark, Green, Angela, Heightman, Melissa, Hillman, Toby, Hishmeh, Lyth, Khunti, Kamlesh, Lip, Gregory Y H, Lorgelly, Paula, Montgomery, Hugh, Strain, W David, Wall, Emma, Watkins, Caroline, Williams, Nefyn, Wootton, Dan G, Banerjee, Amitava
• Format: Article
• Language: English
• Subjects: Biology and Life Sciences; Care and treatment; Charities; Comorbid patients; Complications; COVID-19; COVID-19 - epidemiology; Critical Pathways; Delivery of Health Care, Integrated; Delphi method; Ethics; Health care access; Health services; Humans; Integrated delivery networks; Integrated delivery systems; Medical care; Medicine and Health Sciences; Mental disorders; Mental Health; Methods; Morbidity; Patients; Post-Acute COVID-19 Syndrome; Primary care; Quality management; Research and Analysis Methods; Severe acute respiratory syndrome coronavirus 2; Signs and symptoms; Social Sciences; Study Protocol; System effectiveness; United Kingdom
• ISSN: 1932-6203; 1932-6203
• DOI: 10.1371/journal.pone.0277936

As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID. Researchregistry: https://www.researchregistry.com/browse-the-registry#home/registrationdetails/6246bfeeeaaed6001f08dadc/.