The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations

• Published in: Journal of clinical epidemiology 2016-05, Vol.73, p.135-141
• Main Authors: Hahn, Elizabeth A, Beaumont, Jennifer L, Pilkonis, Paul A, Garcia, Sofia F, Magasi, Susan, DeWalt, Darren A, Cella, David
• Format: Article
• Language: English
• Subjects: Adolescent; Adult; Aged; Back pain; Chronic Disease; Chronic illnesses; Chronic obstructive pulmonary disease; Clinical medicine; Epidemiology; Female; Global health; Heart failure; Humans; Information systems; Internal Medicine; Linear models; Longitudinal Studies; Male; Middle Aged; Patient-reported outcomes; Personal Satisfaction; PROMIS; Psychometrics; Quality of life; Reproducibility of Results; Responsiveness; Self Report; Social Behavior; Social function; Social health; Standard deviation; Studies; Surveys and Questionnaires - standards; Transplants & implants; Young Adult
• ISSN: 0895-4356; 1878-5921
• DOI: 10.1016/j.jclinepi.2015.08.034

Abstract Objectives To conduct a longitudinal evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) social function measures (satisfaction with participation in social roles and satisfaction with participation in discretionary social activities) in English-speaking people with chronic health conditions. Study Design and Setting Adults receiving treatment for chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD), chronic back pain, or depression completed PROMIS computer-based measures of social health at two time points approximately 3 months apart and global ratings of change. Linear mixed effects models and standardized response means were estimated for the two social function measures. Results A total of 599 people participated: 79 with stable COPD, 46 COPD exacerbation, 60 with CHF, 196 with depression, and 218 with back pain. Four groups experienced improvement over time, one (COPD stable) changed very little. Those who reported better global ratings of change in overall health experienced larger changes in social function than those who reported the same or worse global health. Conclusion This study provided support for responsiveness to change for two PROMIS social function measures. These results provide further evidence of the PROMIS goal to enable comparable measurement of universally relevant symptoms and experiences that apply to people with a variety of diseases.