Perceptions of people with osteogenesis imperfecta about the interventions of the occupational therapy and its possibilities of care

• Published in: Cadernos Brasileiros de Terapia Ocupacional 2018, Vol.26 (2), p.399-407
• Main Authors: de Paiva, Daniela Faleiros, de Oliveira, Marina Leandrini, Almohalha, Lucieny
• Format: Article
• Language: eng ; por
• Subjects: Collagen; Genetic disorders; HEALTH CARE SCIENCES & SERVICES; Life expectancy; Occupational therapy; Physical therapy; Professionals
• ISSN: 0104-4931; 2526-8910; 2238-2860; 2526-8910
• DOI: 10.4322/2526-8910.ctoAO1135

Osteogenesis Imperfecta (OI) is a genetic disorder that compromises the collagen formation, which alters in a significant way the body structures causing osseous deformities. Faced with the different possibilities of care for people with OI, stand out the occupational therapy interventions, that even being poorly explored in the context of the national scientific production, show significant practices to compose a team of care for people with OI. Thus, this study aims to identifying the perceptions of people with OI about work of the occupational therapist. It was done a qualitative study based on the application of semi-structured interviews with five adults with OI. Interview data were analyzed by the technique of analysis of thematic content, allowing to cluster the results into three categories: "Knowing the participants: characterization of the sample"; "Living with osteogenesis imperfecta: possibilities and constructions"; and "Occupational therapy and osteogenesis imperfecta: perceptions, fragments, and experiences". The results lead to the conclusion that these professionals have a wide range of practices that still have to be better explored and points out an encouragement for more scientific production in the area.