A framework to support quality of care for patients with chronic intestinal failure requiring home parenteral nutrition

• Published in: Journal of gastroenterology and hepatology 2020-04, Vol.35 (4), p.567-576
• Main Authors: Osland, Emma J, McGrath, Kathleen H, Ali, Azmat, Carey, Sharon, Daniells, Suzie, Angstmann, Katerina, Bines, Julie, Asrani, Varsha, Watson, Caitlin, Jones, Lynn, De Cruz, Peter
• Format: Article
• Language: English
• Subjects: home; intestinal diseases; Intestine; Nutrition; Parenteral nutrition; Quality; quality of health care; standard of care; Standardization
• ISSN: 0815-9319; 1440-1746
• DOI: 10.1111/jgh.14841

Background and Aim Chronic intestinal failure requiring home parenteral nutrition (HPN) is a disabling condition that is best facilitated by a multidisciplinary approach to care. Variation in care has been identified as a key barrier to achieving quality of care for patients on HPN and requires appropriate strategies to help standardize management. Method The Australasian Society for Parenteral and Enteral Nutrition (AuSPEN) assembled a multidisciplinary working group of 15 clinicians to develop a quality framework to assist with the standardization of HPN care in Australia. Obstacles to quality care specific to Australia were identified by consensus. Drafts of the framework documents were based on the available literature and refined by two Delphi rounds with the clinician work group, followed by a further two involving HPN consumers. The Oxford Centre for Evidence‐Based Medicine Levels of Evidence was used to assess the strength of evidence underpinning each concept within the framework documents. Results Quality indicators, standards of care, and position statements have been developed to progress the delivery of quality care to HPN patients. Conclusion The quality framework proposed by AuSPEN is intended to provide a practical structure for clinical and organizational aspects of HPN service delivery to reduce variation in care and improve quality of care and represents the initial step towards development of a national model of care for HPN patients in Australia. While developed for implementation in Australia, the evidence‐based framework also has relevance to the international HPN community.