Hā Ora: Reflecting on a Kaupapa Māori Community-Engaged Co-design Approach to Lung Cancer Research

• Published in: International Journal of Indigenous Health 2021-01, Vol.16 (2), p.192-207
• Main Authors: Kidd, Jacquie, Cassim, Shemana, Rolleston, Anna, Keenan, Rawiri, Lawrenson, Ross, Sheridan, Nicolette, Warbrick, Isaac, Ngaheu, Janette, Hokowhitu, Brenda
• Format: Article
• Language: English
• Subjects: Adaptability; Cancer research; Co-design; Community; Community involvement; Health care; Health disparities; Lung cancer; Medical research; Rural areas; Sovereignty; Teams
• ISSN: 2291-9368; 2291-9376
• DOI: 10.32799/ijih.v16i2.33106

Co-designed research is gaining prominence within the health care space. Community engagement is a key premise of co-design and is also particularly vital when carrying out kaupapa Māori research. Kaupapa Māori describes a “by Māori, for Māori” approach to research in Aotearoa/New Zealand. This article discusses the research process of Hā Ora: a co-design project underpinned by a kaupapa Māori approach. The objective was to explore the barriers to early presentation and diagnosis of lung cancer, barriers identified by Māori. The team worked with four rural Māori communities, with whom we aimed to co-design local interventions that would promote earlier diagnosis of lung cancer. This article highlights and unpacks the complexities of carrying out community- engaged co-design with Māori who live in rural communities. In particular, we draw attention to the importance of flexibility and adaptability in the research process. We highlight issues pertaining to timelines and budgets, and also the intricacies of involving co-governance and advisory groups. Overall, through this article, we argue that health researchers need to prioritise working with and for participants, rather than on them, especially when working with Māori communities.