Exploring family members’ and health care professionals’ perceptions on ICU diaries: a systematic review and qualitative data synthesis

• Published in: Intensive care medicine 2021-07, Vol.47 (7), p.737-749
• Main Authors: Brandao Barreto, Bruna, Luz, Mariana, do Amaral Lopes, Selma Alves Valente, Rosa, Regis Goulart, Gusmao-Flores, Dimitri
• Format: Article
• Language: English
• Subjects: Anesthesiology; CRD; CRD42020159211; Critical Care Medicine; Diaries; Emergency Medicine; Health care; Health care industry; Illnesses; Intensive; Intensive care; Medical personnel; Medicine; Medicine & Public Health; Pain Medicine; Patients; Pediatrics; Pneumology/Respiratory System; Qualitative analysis; Qualitative research; Quality assessment; Quality control; Synthesis; Systematic Review; Writing
• ISSN: 0342-4642; 1432-1238
• DOI: 10.1007/s00134-021-06443-w

Purpose Although the intensive care unit (ICU) diary has been proposed as a tool for preventing psychiatric symptoms in survivors of critical illness, relatives and health care providers may benefit from it too. This study aims to summarize the current qualitative evidence on families’ and health care professionals’ experiences of writing in and reading the ICU diaries. Methods We searched MEDLINE, OVID, Embase, and EBSCOhost from inception to February 2021, and included all the studies that presented any qualitative finding regarding relatives’ and health care providers’ experiences of writing in and reading an ICU diary. We used modified Critical Appraisal Skills Programme (CASP) and Confidence in the Evidence from Reviews of Qualitative Research (CERQual) for quality assessment. A thematic synthesis approach was used to analyze and synthesize the qualitative data. Results Twenty-eight studies were analyzed (15 including family members and 13 including health care professionals). For family members, the ICU diary is an important source of medical information, provides a way for them to register their presence at patient’s bedside and express their feelings, and contributes to humanizing the ICU staff. This impression is shared by relatives of patients who did not survive critical illness. Health care providers believe the diary is beneficial for themselves and others; however, they are concerned with possible negative impressions from patients and family that could lead to judicial problems. They also remark on several obstacles they face when constructing the diaries (workload, creativity, and environment for writing), which can make it a distressful process. Conclusion This qualitative synthesis shows that family members and health care professionals consider the ICU diary a valuable intervention. It also brings evidence to challenges faced during diary writing, which should be carefully approached in order to reduce the stress associated with this process.