Developing an Education Pathway for Breast Cancer Patients Receiving Rapid Diagnostic Testing: Investigating Informational and Supportive Care Needs

Several studies have examined the informational needs of patients undergoing the breast diagnostic process where needs are highest during testing and prior to receiving a diagnosis. To aid in the development of an education pathway, we identified patient information needs. A multi-method approach to...

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Bibliographic Details
Published in:Journal of cancer education 2022-06, Vol.37 (3), p.568-577
Main Authors: Brual, Janette, Abdelmutti, Nazek, Agarwal, Arnav, Arisz, Angela, Benea, Aronela, Lord, Bridgette, Massey, Christine, Giuliani, Meredith, Stuart-McEwan, Terri, Papadakos, Janet
Format: Article
Language:English
Subjects:
Biomedical and Life Sciences
Biomedicine
Breast cancer
Cancer
Cancer Research
Consumer health information
Coping
Diagnostic tests
Educational Attainment
Ethnography
Information Needs
Medical diagnosis
Multivariate Analysis
Needs Assessment
Patients
Pharmacology/Toxicology
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Summary:Several studies have examined the informational needs of patients undergoing the breast diagnostic process where needs are highest during testing and prior to receiving a diagnosis. To aid in the development of an education pathway, we identified patient information needs. A multi-method approach to identify areas of need and to understand when and how information should be provided to patients was undertaken. The methods included an environmental scan of consumer health information, ethnographic observation of the patient clinical experience, key informant interviews, and a needs assessment survey. The data collected from the environmental scan, ethnography, and interviews were used to develop the items in the survey. The survey was developed around four domains: (1) Medical Procedures and Tests, (2) Understanding the Rapid Diagnostic Process, (3) Breast Cancer and Other Breast Conditions, and (4) Support and Coping. A total of 101 patients completed the survey. Mean importance scores were significantly different between domains of information need ( p  
ISSN:0885-8195
1543-0154
DOI:10.1007/s13187-020-01847-6