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Occupational repercussions in people with end-stage chronic kidney disease who attend hemodialysis: an occupational justice framework

Abstract Objective To know the occupational repercussions caused by hemodialysis treatment in people suffering from Terminal Chronic Kidney Disease and how public policies in Chile, specifically, Explicit Health Guarantees address the needs of this population. Method Environmental observation guidel...

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Published in:Cadernos Brasileiros de Terapia Ocupacional 2022, Vol.30 (spe), p.1-18
Main Authors: Cárdenas-Cárdenas, Natacha, Miranda-Catalan, Maria Ignacia, Obando-Conejeros, Constanza, Rosales-González, Javiera, Carrasco-Madariaga, Jimena
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creator Cárdenas-Cárdenas, Natacha
Miranda-Catalan, Maria Ignacia
Obando-Conejeros, Constanza
Rosales-González, Javiera
Carrasco-Madariaga, Jimena
description Abstract Objective To know the occupational repercussions caused by hemodialysis treatment in people suffering from Terminal Chronic Kidney Disease and how public policies in Chile, specifically, Explicit Health Guarantees address the needs of this population. Method Environmental observation guidelines, field notes, and semi-structured interviews with users and professionals who work in the Hemodialysis Unit of the Hospital Base de Valdivia, Chile were used. In addition, a documentary analysis was carried out that included clinical guidelines and technical standards of the Hemodialysis Unit. Results The data were organized into 5 topics: Hospital Base Valdivia hemodialysis unit, Process of change and adaptation, Routines and habits, Roles and Sufficiency of public policies. Breaks in occupational histories, difficulties in the adaptation process and the need for a comprehensive approach that is not considered by public policies are evidenced. Conclusion The need for a multidisciplinary treatment is proposed that considers an accompaniment in the process of occupational adaptation, especially in the early stages after diagnosis in order to prevent the impact on the quality of life of this population, as well as the need to develop more studies on the subject. Resumo Objetivo Conhecer as repercussões ocupacionais do tratamento hemodialítico em pessoas com Doença Renal Crônica Terminal e como as políticas públicas no Chile, especificamente as Garantias Explícitas de Saúde atendem às necessidades dessa população. Método Foram utilizadas diretrizes de observação ambiental, notas de campo, entrevistas semiestruturadas com usuários, usuários e profissionais que atuam na Unidade de Hemodiálise do Hospital Base de Valdívia, Chile. Além disso, foi realizada uma análise documental que incluiu diretrizes clínicas e normas técnicas da Unidade de Hemodiálise. Resultados Os dados foram organizados em 5 tópicos: Unidade de hemodiálise da Base Hospitalar Valdívia, Processo de mudança e adaptação, Rotinas e hábitos, Papéis e Suficiência das políticas públicas. São evidenciadas quebras nas histórias ocupacionais, dificuldades no processo de adaptação e a necessidade de uma abordagem abrangente que não é contemplada pelas políticas públicas. Conclusão Propõe-se a necessidade de um tratamento multiprofissional que considere um acompanhamento no processo de adaptação ocupacional, principalmente nas fases iniciais após o diagnóstico, a fim de prevenir o impacto na qualidade de
doi_str_mv 10.1590/2526-8910.ctoao233230832
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Method Environmental observation guidelines, field notes, and semi-structured interviews with users and professionals who work in the Hemodialysis Unit of the Hospital Base de Valdivia, Chile were used. In addition, a documentary analysis was carried out that included clinical guidelines and technical standards of the Hemodialysis Unit. Results The data were organized into 5 topics: Hospital Base Valdivia hemodialysis unit, Process of change and adaptation, Routines and habits, Roles and Sufficiency of public policies. Breaks in occupational histories, difficulties in the adaptation process and the need for a comprehensive approach that is not considered by public policies are evidenced. Conclusion The need for a multidisciplinary treatment is proposed that considers an accompaniment in the process of occupational adaptation, especially in the early stages after diagnosis in order to prevent the impact on the quality of life of this population, as well as the need to develop more studies on the subject. Resumo Objetivo Conhecer as repercussões ocupacionais do tratamento hemodialítico em pessoas com Doença Renal Crônica Terminal e como as políticas públicas no Chile, especificamente as Garantias Explícitas de Saúde atendem às necessidades dessa população. Método Foram utilizadas diretrizes de observação ambiental, notas de campo, entrevistas semiestruturadas com usuários, usuários e profissionais que atuam na Unidade de Hemodiálise do Hospital Base de Valdívia, Chile. Além disso, foi realizada uma análise documental que incluiu diretrizes clínicas e normas técnicas da Unidade de Hemodiálise. Resultados Os dados foram organizados em 5 tópicos: Unidade de hemodiálise da Base Hospitalar Valdívia, Processo de mudança e adaptação, Rotinas e hábitos, Papéis e Suficiência das políticas públicas. São evidenciadas quebras nas histórias ocupacionais, dificuldades no processo de adaptação e a necessidade de uma abordagem abrangente que não é contemplada pelas políticas públicas. Conclusão Propõe-se a necessidade de um tratamento multiprofissional que considere um acompanhamento no processo de adaptação ocupacional, principalmente nas fases iniciais após o diagnóstico, a fim de prevenir o impacto na qualidade de vida desta população, bem como a necessidade de desenvolver mais estudos sobre o assunto. Resumen Objetivo Conocer las repercusiones ocupacionales que provoca el tratamiento de hemodiálisis en personas que padecen Enfermedad Renal Crónica Terminal (ERC) y de qué manera las políticas públicas en Chile, específicamente, Garantías Explícitas de Salud (GES) abordan las necesidades de esta población. Método Se utilizaron pautas de observación ambiental, notas de campo, entrevistas semiestructuradas a usuarios, usuarias y profesionales que se desempeñan en la Unidad de Hemodiálisis del Hospital Base de Valdivia, Chile. Además, se realizó un análisis documental que incluyó guías clínicas y normas técnicas de la Unidad de Hemodiálisis. Resultados Los datos se organizaron en 5 tópicos: Unidad de hemodiálisis Hospital Base Valdivia, Proceso de cambio y adaptación, Rutinas y hábitos, Roles y Suficiencia de políticas públicas. Se evidencian quiebres en las historias ocupacionales, dificultades en el proceso de adaptación y la necesidad de un abordaje integral que no es considerado por las políticas públicas. Conclusion Se propone la necesidad de un tratamiento multidisciplinario que considere un acompañamiento en el proceso de adaptación ocupacional, en especial en etapas tempranas después del diagnóstico, a fin de prevenir el impacto en la calidad de vida de esta población, así como la necesidad de desarrollar más estudios acerca del tema.</description><identifier>ISSN: 2526-8910</identifier><identifier>ISSN: 0104-4931</identifier><identifier>EISSN: 2526-8910</identifier><identifier>EISSN: 2238-2860</identifier><identifier>DOI: 10.1590/2526-8910.ctoao233230832</identifier><language>eng</language><publisher>São Carlos: Federal University of Sao Carlos (UFSCar), Department of Occupational Therapy</publisher><subject>Chronic illnesses ; Hemodialysis ; Hospitals ; Kidney diseases ; Occupational therapy ; Population ; Public policy ; Quality of life</subject><ispartof>Cadernos Brasileiros de Terapia Ocupacional, 2022, Vol.30 (spe), p.1-18</ispartof><rights>2022. This work is published under https://creativecommons.org/licenses/by/4.0 (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c282t-9e94b6982c230985dbba45513988e3c1c0e5410977575ef3a808b93411dc96c33</cites><orcidid>0000-0002-7073-1592 ; 0000-0001-6458-5077 ; 0000-0001-7395-1534 ; 0000-0003-2163-2050 ; 0000-0001-8694-0252</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.proquest.com/docview/2689220664/fulltextPDF?pq-origsite=primo$$EPDF$$P50$$Gproquest$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.proquest.com/docview/2689220664?pq-origsite=primo$$EHTML$$P50$$Gproquest$$Hfree_for_read</linktohtml><link.rule.ids>314,780,784,4024,25753,27923,27924,27925,37012,44590,75126</link.rule.ids></links><search><creatorcontrib>Cárdenas-Cárdenas, Natacha</creatorcontrib><creatorcontrib>Miranda-Catalan, Maria Ignacia</creatorcontrib><creatorcontrib>Obando-Conejeros, Constanza</creatorcontrib><creatorcontrib>Rosales-González, Javiera</creatorcontrib><creatorcontrib>Carrasco-Madariaga, Jimena</creatorcontrib><title>Occupational repercussions in people with end-stage chronic kidney disease who attend hemodialysis: an occupational justice framework</title><title>Cadernos Brasileiros de Terapia Ocupacional</title><description>Abstract Objective To know the occupational repercussions caused by hemodialysis treatment in people suffering from Terminal Chronic Kidney Disease and how public policies in Chile, specifically, Explicit Health Guarantees address the needs of this population. Method Environmental observation guidelines, field notes, and semi-structured interviews with users and professionals who work in the Hemodialysis Unit of the Hospital Base de Valdivia, Chile were used. In addition, a documentary analysis was carried out that included clinical guidelines and technical standards of the Hemodialysis Unit. Results The data were organized into 5 topics: Hospital Base Valdivia hemodialysis unit, Process of change and adaptation, Routines and habits, Roles and Sufficiency of public policies. Breaks in occupational histories, difficulties in the adaptation process and the need for a comprehensive approach that is not considered by public policies are evidenced. Conclusion The need for a multidisciplinary treatment is proposed that considers an accompaniment in the process of occupational adaptation, especially in the early stages after diagnosis in order to prevent the impact on the quality of life of this population, as well as the need to develop more studies on the subject. Resumo Objetivo Conhecer as repercussões ocupacionais do tratamento hemodialítico em pessoas com Doença Renal Crônica Terminal e como as políticas públicas no Chile, especificamente as Garantias Explícitas de Saúde atendem às necessidades dessa população. Método Foram utilizadas diretrizes de observação ambiental, notas de campo, entrevistas semiestruturadas com usuários, usuários e profissionais que atuam na Unidade de Hemodiálise do Hospital Base de Valdívia, Chile. Além disso, foi realizada uma análise documental que incluiu diretrizes clínicas e normas técnicas da Unidade de Hemodiálise. Resultados Os dados foram organizados em 5 tópicos: Unidade de hemodiálise da Base Hospitalar Valdívia, Processo de mudança e adaptação, Rotinas e hábitos, Papéis e Suficiência das políticas públicas. São evidenciadas quebras nas histórias ocupacionais, dificuldades no processo de adaptação e a necessidade de uma abordagem abrangente que não é contemplada pelas políticas públicas. Conclusão Propõe-se a necessidade de um tratamento multiprofissional que considere um acompanhamento no processo de adaptação ocupacional, principalmente nas fases iniciais após o diagnóstico, a fim de prevenir o impacto na qualidade de vida desta população, bem como a necessidade de desenvolver mais estudos sobre o assunto. Resumen Objetivo Conocer las repercusiones ocupacionales que provoca el tratamiento de hemodiálisis en personas que padecen Enfermedad Renal Crónica Terminal (ERC) y de qué manera las políticas públicas en Chile, específicamente, Garantías Explícitas de Salud (GES) abordan las necesidades de esta población. Método Se utilizaron pautas de observación ambiental, notas de campo, entrevistas semiestructuradas a usuarios, usuarias y profesionales que se desempeñan en la Unidad de Hemodiálisis del Hospital Base de Valdivia, Chile. Además, se realizó un análisis documental que incluyó guías clínicas y normas técnicas de la Unidad de Hemodiálisis. Resultados Los datos se organizaron en 5 tópicos: Unidad de hemodiálisis Hospital Base Valdivia, Proceso de cambio y adaptación, Rutinas y hábitos, Roles y Suficiencia de políticas públicas. Se evidencian quiebres en las historias ocupacionales, dificultades en el proceso de adaptación y la necesidad de un abordaje integral que no es considerado por las políticas públicas. Conclusion Se propone la necesidad de un tratamiento multidisciplinario que considere un acompañamiento en el proceso de adaptación ocupacional, en especial en etapas tempranas después del diagnóstico, a fin de prevenir el impacto en la calidad de vida de esta población, así como la necesidad de desarrollar más estudios acerca del tema.</description><subject>Chronic illnesses</subject><subject>Hemodialysis</subject><subject>Hospitals</subject><subject>Kidney diseases</subject><subject>Occupational therapy</subject><subject>Population</subject><subject>Public policy</subject><subject>Quality of life</subject><issn>2526-8910</issn><issn>0104-4931</issn><issn>2526-8910</issn><issn>2238-2860</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>PIMPY</sourceid><recordid>eNpVkFtLwzAUgIMoOOb-Q8Dnai5Nm_gmwxsM9qLPIU1PbbauqUnK2A_wf9sxkfl0zuF8nMuHEKbkjgpF7plgRSbVVNrkjWecM04kZxdo9te6PMuv0SLGDSGEkbwoiZyh77W142CS873pcIABgh1jnMqIXY8H8EMHeO9Si6Gvs5jMJ2DbBt87i7eu7uGAaxfBxIlqPTYpTRxuYedrZ7pDdPEBmx778zWbMSZnATfB7GDvw_YGXTWmi7D4jXP08fz0vnzNVuuXt-XjKrNMspQpUHlVKMns9KaSoq4qkwtBuZISuKWWgMgpUWUpSgENN5LISvGc0tqqwnI-R7enuUPwXyPEpDd-DNNJUbNCKsZIUeQTJU-UDT7GAI0egtuZcNCU6KN3fRSqj0L1f-_8B53IecM</recordid><startdate>2022</startdate><enddate>2022</enddate><creator>Cárdenas-Cárdenas, Natacha</creator><creator>Miranda-Catalan, Maria Ignacia</creator><creator>Obando-Conejeros, Constanza</creator><creator>Rosales-González, Javiera</creator><creator>Carrasco-Madariaga, Jimena</creator><general>Federal University of Sao Carlos (UFSCar), Department of Occupational Therapy</general><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7XB</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>CLZPN</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>KB0</scope><scope>M2O</scope><scope>MBDVC</scope><scope>NAPCQ</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><orcidid>https://orcid.org/0000-0002-7073-1592</orcidid><orcidid>https://orcid.org/0000-0001-6458-5077</orcidid><orcidid>https://orcid.org/0000-0001-7395-1534</orcidid><orcidid>https://orcid.org/0000-0003-2163-2050</orcidid><orcidid>https://orcid.org/0000-0001-8694-0252</orcidid></search><sort><creationdate>2022</creationdate><title>Occupational repercussions in people with end-stage chronic kidney disease who attend hemodialysis: an occupational justice framework</title><author>Cárdenas-Cárdenas, Natacha ; 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Method Environmental observation guidelines, field notes, and semi-structured interviews with users and professionals who work in the Hemodialysis Unit of the Hospital Base de Valdivia, Chile were used. In addition, a documentary analysis was carried out that included clinical guidelines and technical standards of the Hemodialysis Unit. Results The data were organized into 5 topics: Hospital Base Valdivia hemodialysis unit, Process of change and adaptation, Routines and habits, Roles and Sufficiency of public policies. Breaks in occupational histories, difficulties in the adaptation process and the need for a comprehensive approach that is not considered by public policies are evidenced. Conclusion The need for a multidisciplinary treatment is proposed that considers an accompaniment in the process of occupational adaptation, especially in the early stages after diagnosis in order to prevent the impact on the quality of life of this population, as well as the need to develop more studies on the subject. Resumo Objetivo Conhecer as repercussões ocupacionais do tratamento hemodialítico em pessoas com Doença Renal Crônica Terminal e como as políticas públicas no Chile, especificamente as Garantias Explícitas de Saúde atendem às necessidades dessa população. Método Foram utilizadas diretrizes de observação ambiental, notas de campo, entrevistas semiestruturadas com usuários, usuários e profissionais que atuam na Unidade de Hemodiálise do Hospital Base de Valdívia, Chile. Além disso, foi realizada uma análise documental que incluiu diretrizes clínicas e normas técnicas da Unidade de Hemodiálise. Resultados Os dados foram organizados em 5 tópicos: Unidade de hemodiálise da Base Hospitalar Valdívia, Processo de mudança e adaptação, Rotinas e hábitos, Papéis e Suficiência das políticas públicas. São evidenciadas quebras nas histórias ocupacionais, dificuldades no processo de adaptação e a necessidade de uma abordagem abrangente que não é contemplada pelas políticas públicas. Conclusão Propõe-se a necessidade de um tratamento multiprofissional que considere um acompanhamento no processo de adaptação ocupacional, principalmente nas fases iniciais após o diagnóstico, a fim de prevenir o impacto na qualidade de vida desta população, bem como a necessidade de desenvolver mais estudos sobre o assunto. Resumen Objetivo Conocer las repercusiones ocupacionales que provoca el tratamiento de hemodiálisis en personas que padecen Enfermedad Renal Crónica Terminal (ERC) y de qué manera las políticas públicas en Chile, específicamente, Garantías Explícitas de Salud (GES) abordan las necesidades de esta población. Método Se utilizaron pautas de observación ambiental, notas de campo, entrevistas semiestructuradas a usuarios, usuarias y profesionales que se desempeñan en la Unidad de Hemodiálisis del Hospital Base de Valdivia, Chile. Además, se realizó un análisis documental que incluyó guías clínicas y normas técnicas de la Unidad de Hemodiálisis. Resultados Los datos se organizaron en 5 tópicos: Unidad de hemodiálisis Hospital Base Valdivia, Proceso de cambio y adaptación, Rutinas y hábitos, Roles y Suficiencia de políticas públicas. Se evidencian quiebres en las historias ocupacionales, dificultades en el proceso de adaptación y la necesidad de un abordaje integral que no es considerado por las políticas públicas. Conclusion Se propone la necesidad de un tratamiento multidisciplinario que considere un acompañamiento en el proceso de adaptación ocupacional, en especial en etapas tempranas después del diagnóstico, a fin de prevenir el impacto en la calidad de vida de esta población, así como la necesidad de desarrollar más estudios acerca del tema.</abstract><cop>São Carlos</cop><pub>Federal University of Sao Carlos (UFSCar), Department of Occupational Therapy</pub><doi>10.1590/2526-8910.ctoao233230832</doi><tpages>18</tpages><orcidid>https://orcid.org/0000-0002-7073-1592</orcidid><orcidid>https://orcid.org/0000-0001-6458-5077</orcidid><orcidid>https://orcid.org/0000-0001-7395-1534</orcidid><orcidid>https://orcid.org/0000-0003-2163-2050</orcidid><orcidid>https://orcid.org/0000-0001-8694-0252</orcidid><oa>free_for_read</oa></addata></record>
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subjects Chronic illnesses
Hemodialysis
Hospitals
Kidney diseases
Occupational therapy
Population
Public policy
Quality of life
title Occupational repercussions in people with end-stage chronic kidney disease who attend hemodialysis: an occupational justice framework
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