What characterizes studies on social support groups for next of kin of persons with dementia? A qualitative systematic review

• Published in: Nordic social work research 2022-10, Vol.12 (4), p.464-479
• Main Authors: Jæger Fjetland, Kirsten, Tokovska, Miroslava
• Format: Article
• Language: English
• Subjects: Dementia; Group dynamics; Intervention; Leadership; next of kin; review; Search strategies; Social groups; Social support; Support groups; Systematic review; tailored support
• ISSN: 2156-857X; 2156-8588
• DOI: 10.1080/2156857X.2020.1817134

The aim of this qualitative systematic review was to produce knowledge according to the research question: What characterizes scientific studies on social support programmes/interventions for next of kin of persons with dementia and how can these characteristics be understood. The used was a systematic search of seven databases of peer-reviewed journals from 2006 to 2018. The search strategy identified 30 relevant studies: 16 exploring participation in support groups only, and 14 exploring support groups as one of several support options for next of kin. show benefits from support programmes/interventions with different content and structure. Further, the importance of individualized, tailored and contextual support is emphasized. The conclusion points to the importance of a multidimensional understanding of social support, including access to different kinds of support tailored to the unique situation of every family. There is particularly a need for further research exploring qualities of group dynamics and leadership in support group programmes/interventions for next of kin of people with dementia.