WHAT INFORMATION DO TEENAGERS WITH IDIOPATHIC SCOLIOSIS AND THEIR FAMILIES NEED WHEN FIRST DIAGNOSED?

Objective: The aim of this study was to determine the information needs of individuals with adolescent idiopathic scoliosis (AIS) and their families when the disease was first diagnosed. Materials and Methods: A total of 117 patients with AIS and their parents volunteered to participate in this stud...

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Bibliographic Details
Published in:The journal of Turkish spinal surgery 2021-07, Vol.32 (3), p.93-99
Main Authors: Kuru Çolak, Tuğba, Akçay, Burçin, Apti, Adnan, Çolak, İlker, Bettany-Saltikov, Josette
Format: Article
Language:English
Subjects:
Children & youth
Decision making
Emotions
Families & family life
Hospitals
Internet
Orthopedics
Parents & parenting
Patients
Questionnaires
Scoliosis
Surgery
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Summary:Objective: The aim of this study was to determine the information needs of individuals with adolescent idiopathic scoliosis (AIS) and their families when the disease was first diagnosed. Materials and Methods: A total of 117 patients with AIS and their parents volunteered to participate in this study. A survey developed specifically to assess the information needs of AIS patients and their families was sent by e-mail. Of the AIS patients, 59.8% were aged >16 years and completed the survey alone, and 40.2% were aged
ISSN:1301-0336
2147-5903
DOI:10.4274/jtss.galenos.2021.65365