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Lived experiences constraints of family caregivers in caring for older adults with chronic diseases during the Covid-19 pandemic: a qualitative study of Indonesian perspectives
Purpose The purpose of this study is to explore the lived experiences of the constraints of older adult family caregivers with chronic diseases in caring for and accessing health services during the COVID-19 pandemic. Design/methodology/approach This study used the descriptive phenomenology qualitat...
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| Published in: | Working with older people (Brighton, England) England), 2024-07, Vol.28 (3), p.258-267 |
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| Main Authors: | , , , , , , |
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| Language: | English |
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| cited_by | cdi_FETCH-LOGICAL-c229t-f1891f872c315561541396bf0257bfeae5e9d7b594d4f0af054c356f15a128f13 |
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| cites | cdi_FETCH-LOGICAL-c229t-f1891f872c315561541396bf0257bfeae5e9d7b594d4f0af054c356f15a128f13 |
| container_end_page | 267 |
| container_issue | 3 |
| container_start_page | 258 |
| container_title | Working with older people (Brighton, England) |
| container_volume | 28 |
| creator | Bahtiar, Bahtiar Sri Widiastuti, Ida Ayu Kade Nopriyanto, Dwi Fitriani, Nurlaila Khumaidi, Khumaidi Andriyanto, Arief Muda, Iskandar |
| description | Purpose
The purpose of this study is to explore the lived experiences of the constraints of older adult family caregivers with chronic diseases in caring for and accessing health services during the COVID-19 pandemic.
Design/methodology/approach
This study used the descriptive phenomenology qualitative method. The sampling method was purposive sampling involving 16 older adult family caregivers.
Findings
The results of this study showed three themes such as difficulties in health services in hospitals during the COVID-19 pandemic (complaints of services provided by doctors, older adult treatment control problems and difficulty getting to hospital health facilities); difficulties accompanying taking older adult medicine (older adult non-compliance response to taking medication and older adult medicine assistance); and psychosocial complaints caring for and accompanying the older adult (negative emotions for the older adult, difficulty interacting with the older adult and the economic burden of caring for the older adult).
Practical implications
Barriers to family caregivers in caring for older adults with chronic diseases can help health-care service providers understand and support families caring for and assisting older adults, which may contribute to the quality of life and care for both family caregivers and older adults.
Originality/value
This study showed that Indonesian family caregivers faced difficulties caring for and living with older adults with chronic diseases during the pandemic. Family caregivers’ experiences are essential when developing an intervention to support and manage health care for older adults with chronic illnesses. |
| doi_str_mv | 10.1108/WWOP-09-2022-0044 |
| format | article |
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The purpose of this study is to explore the lived experiences of the constraints of older adult family caregivers with chronic diseases in caring for and accessing health services during the COVID-19 pandemic.
Design/methodology/approach
This study used the descriptive phenomenology qualitative method. The sampling method was purposive sampling involving 16 older adult family caregivers.
Findings
The results of this study showed three themes such as difficulties in health services in hospitals during the COVID-19 pandemic (complaints of services provided by doctors, older adult treatment control problems and difficulty getting to hospital health facilities); difficulties accompanying taking older adult medicine (older adult non-compliance response to taking medication and older adult medicine assistance); and psychosocial complaints caring for and accompanying the older adult (negative emotions for the older adult, difficulty interacting with the older adult and the economic burden of caring for the older adult).
Practical implications
Barriers to family caregivers in caring for older adults with chronic diseases can help health-care service providers understand and support families caring for and assisting older adults, which may contribute to the quality of life and care for both family caregivers and older adults.
Originality/value
This study showed that Indonesian family caregivers faced difficulties caring for and living with older adults with chronic diseases during the pandemic. Family caregivers’ experiences are essential when developing an intervention to support and manage health care for older adults with chronic illnesses.</description><identifier>ISSN: 1366-3666</identifier><identifier>EISSN: 1366-3666</identifier><identifier>EISSN: 2042-8790</identifier><identifier>DOI: 10.1108/WWOP-09-2022-0044</identifier><language>eng</language><publisher>Brighton: Emerald Publishing Limited</publisher><subject>Adults ; Blood pressure ; Caregivers ; Caregiving ; Chronic illnesses ; Complaints ; COVID-19 ; Data collection ; Developing countries ; Drugs ; Emotions ; Families & family life ; Health services ; Hospitals ; Interviews ; LDCs ; Negative emotions ; Noncompliance ; Older people ; Pandemics ; Phenomenology ; Psychosocial factors ; Qualitative research ; Quality of life ; Researchers ; Sampling</subject><ispartof>Working with older people (Brighton, England), 2024-07, Vol.28 (3), p.258-267</ispartof><rights>Emerald Publishing Limited</rights><rights>Emerald Publishing Limited.</rights><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c229t-f1891f872c315561541396bf0257bfeae5e9d7b594d4f0af054c356f15a128f13</citedby><cites>FETCH-LOGICAL-c229t-f1891f872c315561541396bf0257bfeae5e9d7b594d4f0af054c356f15a128f13</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,12846,27924,27925,30999</link.rule.ids></links><search><creatorcontrib>Bahtiar, Bahtiar</creatorcontrib><creatorcontrib>Sri Widiastuti, Ida Ayu Kade</creatorcontrib><creatorcontrib>Nopriyanto, Dwi</creatorcontrib><creatorcontrib>Fitriani, Nurlaila</creatorcontrib><creatorcontrib>Khumaidi, Khumaidi</creatorcontrib><creatorcontrib>Andriyanto, Arief</creatorcontrib><creatorcontrib>Muda, Iskandar</creatorcontrib><title>Lived experiences constraints of family caregivers in caring for older adults with chronic diseases during the Covid-19 pandemic: a qualitative study of Indonesian perspectives</title><title>Working with older people (Brighton, England)</title><description>Purpose
The purpose of this study is to explore the lived experiences of the constraints of older adult family caregivers with chronic diseases in caring for and accessing health services during the COVID-19 pandemic.
Design/methodology/approach
This study used the descriptive phenomenology qualitative method. The sampling method was purposive sampling involving 16 older adult family caregivers.
Findings
The results of this study showed three themes such as difficulties in health services in hospitals during the COVID-19 pandemic (complaints of services provided by doctors, older adult treatment control problems and difficulty getting to hospital health facilities); difficulties accompanying taking older adult medicine (older adult non-compliance response to taking medication and older adult medicine assistance); and psychosocial complaints caring for and accompanying the older adult (negative emotions for the older adult, difficulty interacting with the older adult and the economic burden of caring for the older adult).
Practical implications
Barriers to family caregivers in caring for older adults with chronic diseases can help health-care service providers understand and support families caring for and assisting older adults, which may contribute to the quality of life and care for both family caregivers and older adults.
Originality/value
This study showed that Indonesian family caregivers faced difficulties caring for and living with older adults with chronic diseases during the pandemic. Family caregivers’ experiences are essential when developing an intervention to support and manage health care for older adults with chronic illnesses.</description><subject>Adults</subject><subject>Blood pressure</subject><subject>Caregivers</subject><subject>Caregiving</subject><subject>Chronic illnesses</subject><subject>Complaints</subject><subject>COVID-19</subject><subject>Data collection</subject><subject>Developing countries</subject><subject>Drugs</subject><subject>Emotions</subject><subject>Families & family life</subject><subject>Health services</subject><subject>Hospitals</subject><subject>Interviews</subject><subject>LDCs</subject><subject>Negative emotions</subject><subject>Noncompliance</subject><subject>Older people</subject><subject>Pandemics</subject><subject>Phenomenology</subject><subject>Psychosocial factors</subject><subject>Qualitative research</subject><subject>Quality of life</subject><subject>Researchers</subject><subject>Sampling</subject><issn>1366-3666</issn><issn>1366-3666</issn><issn>2042-8790</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><sourceid>ALSLI</sourceid><sourceid>HEHIP</sourceid><sourceid>M2R</sourceid><sourceid>M2S</sourceid><recordid>eNptkcFq3DAURU1poWnaD-juQddO9WzLY3VXhiYNDCSLlCyFRnrKKHgkR5KTzF_1Eyt3umggCyEJnXuf4FTVZ2RniGz4ent7dV0zUTesaWrGuu5NdYJt39dl9W__O7-vPqR0z1jLUPCT6vfGPZIBep4oOvKaEujgU47K-ZwgWLBq78YDaBXprrAxgfPLzfk7sCFCGA1FUGYeC__k8g70LgbvNBiXSKXSaOa_dN4RrMOjMzUKmJQ3tHf6Gyh4mNXossqlHlKezWGZe-lN8JSc8lD-libSy3v6WL2zakz06d9-Wv06_3Gz_llvri4u1983tW4akWuLg0A7rBrdIuc98g5b0W8ta_hqa0kRJ2FWWy4601mmLOOdbnlvkStsBovtafXl2DvF8DBTyvI-zNGXkbJlQ8cFchwKhUdKx5BSJCun6PYqHiQyuYiRixjJhFzEyEVMybBjhvYU1Whejbxw2f4BpK6TLw</recordid><startdate>20240730</startdate><enddate>20240730</enddate><creator>Bahtiar, Bahtiar</creator><creator>Sri Widiastuti, Ida Ayu Kade</creator><creator>Nopriyanto, Dwi</creator><creator>Fitriani, Nurlaila</creator><creator>Khumaidi, Khumaidi</creator><creator>Andriyanto, Arief</creator><creator>Muda, Iskandar</creator><general>Emerald Publishing Limited</general><general>Emerald Group Publishing Limited</general><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7QJ</scope><scope>7RQ</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>8AO</scope><scope>8FI</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AN0</scope><scope>ASE</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FPQ</scope><scope>FYUFA</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>HEHIP</scope><scope>K6X</scope><scope>M0R</scope><scope>M0T</scope><scope>M2M</scope><scope>M2O</scope><scope>M2R</scope><scope>M2S</scope><scope>MBDVC</scope><scope>NAPCQ</scope><scope>PADUT</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope></search><sort><creationdate>20240730</creationdate><title>Lived experiences constraints of family caregivers in caring for older adults with chronic diseases during the Covid-19 pandemic: a qualitative study of Indonesian perspectives</title><author>Bahtiar, Bahtiar ; Sri Widiastuti, Ida Ayu Kade ; Nopriyanto, Dwi ; Fitriani, Nurlaila ; Khumaidi, Khumaidi ; Andriyanto, Arief ; Muda, Iskandar</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c229t-f1891f872c315561541396bf0257bfeae5e9d7b594d4f0af054c356f15a128f13</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Adults</topic><topic>Blood pressure</topic><topic>Caregivers</topic><topic>Caregiving</topic><topic>Chronic illnesses</topic><topic>Complaints</topic><topic>COVID-19</topic><topic>Data collection</topic><topic>Developing countries</topic><topic>Drugs</topic><topic>Emotions</topic><topic>Families & family life</topic><topic>Health services</topic><topic>Hospitals</topic><topic>Interviews</topic><topic>LDCs</topic><topic>Negative emotions</topic><topic>Noncompliance</topic><topic>Older people</topic><topic>Pandemics</topic><topic>Phenomenology</topic><topic>Psychosocial factors</topic><topic>Qualitative research</topic><topic>Quality of life</topic><topic>Researchers</topic><topic>Sampling</topic><toplevel>online_resources</toplevel><creatorcontrib>Bahtiar, Bahtiar</creatorcontrib><creatorcontrib>Sri Widiastuti, Ida Ayu Kade</creatorcontrib><creatorcontrib>Nopriyanto, Dwi</creatorcontrib><creatorcontrib>Fitriani, Nurlaila</creatorcontrib><creatorcontrib>Khumaidi, Khumaidi</creatorcontrib><creatorcontrib>Andriyanto, Arief</creatorcontrib><creatorcontrib>Muda, Iskandar</creatorcontrib><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection【Remote access available】</collection><collection>ProQuest Central (Corporate)</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>ProQuest Career & Technical Education Database</collection><collection>ProQuest Nursing and Allied Health Journals</collection><collection>ProQuest Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni)</collection><collection>ProQuest Central</collection><collection>Social Science Premium Collection (Proquest) (PQ_SDU_P3)</collection><collection>British Nursing Database</collection><collection>British Nursing Index</collection><collection>ProQuest Central Essentials</collection><collection>AUTh Library subscriptions: ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>Health Research Premium Collection</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>Sociology Collection</collection><collection>British Nursing Index</collection><collection>ProQuest Family Health</collection><collection>ProQuest Healthcare Administration Database</collection><collection>Psychology Database (ProQuest)</collection><collection>ProQuest Research Library</collection><collection>Social Science Database (ProQuest)</collection><collection>Sociology Database (ProQuest)</collection><collection>Research Library (Corporate)</collection><collection>Nursing & Allied Health Premium</collection><collection>Research Library China</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><jtitle>Working with older people (Brighton, England)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Bahtiar, Bahtiar</au><au>Sri Widiastuti, Ida Ayu Kade</au><au>Nopriyanto, Dwi</au><au>Fitriani, Nurlaila</au><au>Khumaidi, Khumaidi</au><au>Andriyanto, Arief</au><au>Muda, Iskandar</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Lived experiences constraints of family caregivers in caring for older adults with chronic diseases during the Covid-19 pandemic: a qualitative study of Indonesian perspectives</atitle><jtitle>Working with older people (Brighton, England)</jtitle><date>2024-07-30</date><risdate>2024</risdate><volume>28</volume><issue>3</issue><spage>258</spage><epage>267</epage><pages>258-267</pages><issn>1366-3666</issn><eissn>1366-3666</eissn><eissn>2042-8790</eissn><abstract>Purpose
The purpose of this study is to explore the lived experiences of the constraints of older adult family caregivers with chronic diseases in caring for and accessing health services during the COVID-19 pandemic.
Design/methodology/approach
This study used the descriptive phenomenology qualitative method. The sampling method was purposive sampling involving 16 older adult family caregivers.
Findings
The results of this study showed three themes such as difficulties in health services in hospitals during the COVID-19 pandemic (complaints of services provided by doctors, older adult treatment control problems and difficulty getting to hospital health facilities); difficulties accompanying taking older adult medicine (older adult non-compliance response to taking medication and older adult medicine assistance); and psychosocial complaints caring for and accompanying the older adult (negative emotions for the older adult, difficulty interacting with the older adult and the economic burden of caring for the older adult).
Practical implications
Barriers to family caregivers in caring for older adults with chronic diseases can help health-care service providers understand and support families caring for and assisting older adults, which may contribute to the quality of life and care for both family caregivers and older adults.
Originality/value
This study showed that Indonesian family caregivers faced difficulties caring for and living with older adults with chronic diseases during the pandemic. Family caregivers’ experiences are essential when developing an intervention to support and manage health care for older adults with chronic illnesses.</abstract><cop>Brighton</cop><pub>Emerald Publishing Limited</pub><doi>10.1108/WWOP-09-2022-0044</doi><tpages>10</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1366-3666 |
| ispartof | Working with older people (Brighton, England), 2024-07, Vol.28 (3), p.258-267 |
| issn | 1366-3666 1366-3666 2042-8790 |
| language | eng |
| recordid | cdi_proquest_journals_3084591518 |
| source | Applied Social Sciences Index & Abstracts (ASSIA); Emerald:Jisc Collections:Emerald Subject Collections HE and FE 2024-2026:Emerald Premier (reading list) |
| subjects | Adults Blood pressure Caregivers Caregiving Chronic illnesses Complaints COVID-19 Data collection Developing countries Drugs Emotions Families & family life Health services Hospitals Interviews LDCs Negative emotions Noncompliance Older people Pandemics Phenomenology Psychosocial factors Qualitative research Quality of life Researchers Sampling |
| title | Lived experiences constraints of family caregivers in caring for older adults with chronic diseases during the Covid-19 pandemic: a qualitative study of Indonesian perspectives |
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