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Wellness in Sickness and Health (The W.I.S.H. Project): Advance Care Planning Preferences and Experiences Among Elderly Latino Patients

Objective: To assess advance care planning (ACP) preferences, experiences, and comfort in discussing end-of-life (EOL) care among elderly Latinos. Methods: Patients aged 60 and older from the Los Angeles County and University of Southern California (LAC+USC) Medical Center Geriatrics Clinic (n = 41)...

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Published in:Clinical gerontologist 2019-05, Vol.42 (3), p.259-266
Main Authors: Maldonado, Lauren Y, Goodson, Ruth B, Mulroy, Matthew C, Johnson, Emily M, Reilly, Jo M, Homeier, Diana C
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container_title Clinical gerontologist
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creator Maldonado, Lauren Y
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description Objective: To assess advance care planning (ACP) preferences, experiences, and comfort in discussing end-of-life (EOL) care among elderly Latinos. Methods: Patients aged 60 and older from the Los Angeles County and University of Southern California (LAC+USC) Medical Center Geriatrics Clinic (n = 41) participated in this intervention. Trained staff conducted ACP counseling with participants in their preferred language, which included: (a) pre-counseling survey about demographics and EOL care attitudes, (b) discussion of ACP and optional completion of an advance directive (AD), and (c) post-session survey. Results: Patients were primarily Spanish speaking with an average of 2.7 chronic medical conditions. Most had not previously documented (95%) or discussed (76%) EOL wishes. Most were unaware they had control over their EOL treatment (61%), but valued learning about EOL options (83%). Post-counseling, 85% reported comfort discussing EOL goals compared to 66% pre-session, and 88% elected to complete an AD. Nearly half of patients reported a desire to discuss EOL wishes sooner. Conclusions: Elderly Latino patients are interested in ACP, given individualized, culturally competent counseling in their preferred language. Clinical Implications: Patients should be offered the opportunity to discuss and document EOL wishes at all primary care appointments, regardless of health status. Counseling should be completed in the patient's preferred language, using culturally competent materials, and with family members present if this is the patient's preference. Cultural-competency training for providers could enhance the impact of EOL discussions and improve ACP completion rates for Latino patients.
doi_str_mv 10.1080/07317115.2017.1389793
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Trained staff conducted ACP counseling with participants in their preferred language, which included: (a) pre-counseling survey about demographics and EOL care attitudes, (b) discussion of ACP and optional completion of an advance directive (AD), and (c) post-session survey. Results: Patients were primarily Spanish speaking with an average of 2.7 chronic medical conditions. Most had not previously documented (95%) or discussed (76%) EOL wishes. Most were unaware they had control over their EOL treatment (61%), but valued learning about EOL options (83%). Post-counseling, 85% reported comfort discussing EOL goals compared to 66% pre-session, and 88% elected to complete an AD. Nearly half of patients reported a desire to discuss EOL wishes sooner. Conclusions: Elderly Latino patients are interested in ACP, given individualized, culturally competent counseling in their preferred language. Clinical Implications: Patients should be offered the opportunity to discuss and document EOL wishes at all primary care appointments, regardless of health status. Counseling should be completed in the patient's preferred language, using culturally competent materials, and with family members present if this is the patient's preference. Cultural-competency training for providers could enhance the impact of EOL discussions and improve ACP completion rates for Latino patients.</description><identifier>ISSN: 0731-7115</identifier><identifier>EISSN: 1545-2301</identifier><identifier>DOI: 10.1080/07317115.2017.1389793</identifier><identifier>PMID: 29206578</identifier><language>eng</language><publisher>United States: Routledge</publisher><subject>Advance directives ; Advance health care directive ; Care plans ; Chronic illnesses ; Comfort ; Counseling ; Cultural competence ; elderly ; End of life decisions ; Geriatrics ; Health status ; Hispanic/Latino ; Latin American cultural groups ; Medical conditions ; medicine ; Older people ; palliative care ; Patient communication ; Patients ; Polls &amp; surveys ; Primary care ; Relatives</subject><ispartof>Clinical gerontologist, 2019-05, Vol.42 (3), p.259-266</ispartof><rights>2017 Taylor &amp; Francis Group, LLC 2017</rights><rights>2017 Taylor &amp; Francis Group, LLC</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c394t-986be0a69b99640a578626108594a17194a837dc5f95037925112574d1df6d053</citedby><cites>FETCH-LOGICAL-c394t-986be0a69b99640a578626108594a17194a837dc5f95037925112574d1df6d053</cites><orcidid>0000-0002-8352-0815 ; 0000-0002-0169-4353</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,27903,27904,30978</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29206578$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Maldonado, Lauren Y</creatorcontrib><creatorcontrib>Goodson, Ruth B</creatorcontrib><creatorcontrib>Mulroy, Matthew C</creatorcontrib><creatorcontrib>Johnson, Emily M</creatorcontrib><creatorcontrib>Reilly, Jo M</creatorcontrib><creatorcontrib>Homeier, Diana C</creatorcontrib><title>Wellness in Sickness and Health (The W.I.S.H. 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Most were unaware they had control over their EOL treatment (61%), but valued learning about EOL options (83%). Post-counseling, 85% reported comfort discussing EOL goals compared to 66% pre-session, and 88% elected to complete an AD. Nearly half of patients reported a desire to discuss EOL wishes sooner. Conclusions: Elderly Latino patients are interested in ACP, given individualized, culturally competent counseling in their preferred language. Clinical Implications: Patients should be offered the opportunity to discuss and document EOL wishes at all primary care appointments, regardless of health status. Counseling should be completed in the patient's preferred language, using culturally competent materials, and with family members present if this is the patient's preference. Cultural-competency training for providers could enhance the impact of EOL discussions and improve ACP completion rates for Latino patients.</description><subject>Advance directives</subject><subject>Advance health care directive</subject><subject>Care plans</subject><subject>Chronic illnesses</subject><subject>Comfort</subject><subject>Counseling</subject><subject>Cultural competence</subject><subject>elderly</subject><subject>End of life decisions</subject><subject>Geriatrics</subject><subject>Health status</subject><subject>Hispanic/Latino</subject><subject>Latin American cultural groups</subject><subject>Medical conditions</subject><subject>medicine</subject><subject>Older people</subject><subject>palliative care</subject><subject>Patient communication</subject><subject>Patients</subject><subject>Polls &amp; surveys</subject><subject>Primary care</subject><subject>Relatives</subject><issn>0731-7115</issn><issn>1545-2301</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNp9kcFuEzEQhi0EoqHwCCBLXMpht_Z6ba85EUWhqRSpkVrUo-WsvdTBawd7A-QJeG283ZQDBy4eW_PNeOb_AXiLUYlRgy4RJ5hjTMsKYV5i0gguyDMww7SmRUUQfg5mI1OM0Bl4ldIOISRQxV-Cs0pUiFHezMDve-OcNylB6-Gtbb893pXXcGWUGx7gxd2DgffldXlbrkq4iWFn2uHDRzjXP5RvDVyoaODGKe-t_5rzpjPR5MTUZPlrb6Kd3vM-ZGLptInuCNdqsD7ATQ7GD-k1eNEpl8ybUzwHXz4v7xarYn1zdb2Yr4uWiHooRMO2BikmtkKwGqm8A6tYFoSKWmU98tkQrlvaCYoIFxXFuKK81lh3TCNKzsHF1Hcfw_eDSYPsbWqzBsqbcEgSC05qyhHBGX3_D7oLh-jzdJJgzBgjeZpM0YlqY0gpry_30fYqHiVGcnRKPjklR6fkyalc9-7U_bDtjf5b9WRNBj5NgPVdiL36GaLTclBHF2IXs_Z2nOO_f_wBEOufDA</recordid><startdate>20190527</startdate><enddate>20190527</enddate><creator>Maldonado, Lauren Y</creator><creator>Goodson, Ruth B</creator><creator>Mulroy, Matthew C</creator><creator>Johnson, Emily M</creator><creator>Reilly, Jo M</creator><creator>Homeier, Diana C</creator><general>Routledge</general><general>Taylor &amp; Francis Ltd</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>K9.</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-8352-0815</orcidid><orcidid>https://orcid.org/0000-0002-0169-4353</orcidid></search><sort><creationdate>20190527</creationdate><title>Wellness in Sickness and Health (The W.I.S.H. 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source Applied Social Sciences Index & Abstracts (ASSIA); Taylor and Francis Social Sciences and Humanities Collection
subjects Advance directives
Advance health care directive
Care plans
Chronic illnesses
Comfort
Counseling
Cultural competence
elderly
End of life decisions
Geriatrics
Health status
Hispanic/Latino
Latin American cultural groups
Medical conditions
medicine
Older people
palliative care
Patient communication
Patients
Polls & surveys
Primary care
Relatives
title Wellness in Sickness and Health (The W.I.S.H. Project): Advance Care Planning Preferences and Experiences Among Elderly Latino Patients
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