Pain, Physical and Social Functioning, and Quality of Life in Individuals with Multiple Hereditary Exostoses in the Netherlands: A National Cohort Study

BACKGROUND:This study aimed to assess pain and quality of life in a large cohort of patients with multiple hereditary exostoses. METHODS:All 322 known patients with multiple hereditary exostoses in the Netherlands were asked to participate. An age-specific questionnaire was sent to children (less th...

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Bibliographic Details
Published in:Journal of bone and joint surgery. American volume 2012-06, Vol.94 (11), p.1013-1020
Main Authors: Goud, A.L, de Lange, J, Scholtes, V.A.B, Bulstra, S.K, Ham, S.J
Format: Article
Language:English
Subjects:
Activities of Daily Living
Adaptation, Psychological
Adolescent
Adult
Age Factors
Aged
Aged, 80 and over
Biological and medical sciences
Child
Child, Preschool
Chronic Disease
Cohort Studies
Diseases of the osteoarticular system
Exostoses, Multiple Hereditary - diagnosis
Exostoses, Multiple Hereditary - psychology
Exostoses, Multiple Hereditary - therapy
Female
Humans
Interpersonal Relations
Male
Malformations and congenital and or hereditary diseases involving bones. Joint deformations
Medical sciences
Middle Aged
Miscellaneous. Osteoarticular involvement in other diseases
Motor Activity - physiology
Netherlands
Orthopedic surgery
Pain, Intractable - diagnosis
Pain, Intractable - epidemiology
Pain, Intractable - therapy
Quality of Life
Risk Assessment
Sex Factors
Sickness Impact Profile
Stress, Psychological
Surgery (general aspects). Transplantations, organ and tissue grafts. Graft diseases
Surveys and Questionnaires
Young Adult
Citations: Items that this one cites
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Summary:BACKGROUND:This study aimed to assess pain and quality of life in a large cohort of patients with multiple hereditary exostoses. METHODS:All 322 known patients with multiple hereditary exostoses in the Netherlands were asked to participate. An age-specific questionnaire was sent to children (less than eighteen years old) and adults. The questionnaire focused on pain, daily activities, and school and/or professional situation. Adults also filled out the RAND-36 questionnaire. Results were statistically analyzed with use of the SPSS 15.0 software and with the chi-square test and multiple logistic regression. A p value of
ISSN:0021-9355
1535-1386
DOI:10.2106/JBJS.K.00406