Measuring health-related quality of life in diabetic peripheral neuropathy: A systematic review

Abstract We undertook a systematic review of disease-specific measures of health-related quality of life (HRQL) in diabetic peripheral neuropathy (DPN) to appraise the scientific (psychometric) evidence and make recommendations about the best instrument(s) to use. DPN is a common complication of dia...

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Bibliographic Details
Published in:Diabetes research and clinical practice 2012-06, Vol.96 (3), p.261-270
Main Authors: Smith, S.C, Lamping, D.L, Maclaine, G.D.H
Format: Article
Language:English
Subjects:
Diabetic Neuropathies - epidemiology
Diabetic Neuropathies - psychology
Diabetic peripheral neuropathy
Endocrinology & Metabolism
Female
Health-related quality of life
Humans
Male
Outcome Assessment (Health Care)
Pain - epidemiology
Pain - psychology
Patient-reported outcome measures
Psychometric
Psychometrics
Quality of Life
Sickness Impact Profile
Surveys and Questionnaires
United Kingdom - epidemiology
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Summary:Abstract We undertook a systematic review of disease-specific measures of health-related quality of life (HRQL) in diabetic peripheral neuropathy (DPN) to appraise the scientific (psychometric) evidence and make recommendations about the best instrument(s) to use. DPN is a common complication of diabetes mellitus. A need to consider the broad impact of DPN, rather than just pain and the increasingly recognised need to assess patient-reported outcomes such as HRQL in evaluating healthcare has led to a demand for rigorous outcome measures. To identify appropriate disease-specific measures, we searched four databases: PubMed, Embase, PsycINFO and CINAHL Plus. Data were extracted from each article using a standard data extraction form and the psychometric properties of each HRQL measure were reviewed. We identified three DPN-specific measures of HRQL: PN-QOL-97, Norfolk QOL-DN, NeuroQoL. All three measures satisfy at least one criterion for both reliability and validity, though all also have some disadvantages. Where there is no requirement for multi-language versions, the PN-QOL-97 is a useful instrument. Studies that involve multiple languages would need to use the shorter QOL-DN but would also need to incorporate complementary instruments to address the psychological and emotional impact of DPN.
ISSN:0168-8227
1872-8227
DOI:10.1016/j.diabres.2011.11.013