Self-Reported Health of People with Intellectual Disability

Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the ch...

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Bibliographic Details
Published in:Intellectual and developmental disabilities 2012-08, Vol.50 (4), p.352-369
Main Author: Fujiura, Glenn T
Format: Article
Language:English
Subjects:
Accuracy
Adult and adolescent clinical studies
Biological and medical sciences
Data collection
Disability
Health care
Health Status
Humans
Intellectual deficiency
Intellectual Disability
Intellectual Disability - psychology
Interviews
Likert Scales
Measurement Techniques
Medical sciences
Mental Retardation
Physical Health
Program Evaluation
Psychology. Psychoanalysis. Psychiatry
Psychopathology. Psychiatry
Research Methodology
Self Disclosure (Individuals)
Self Report
Social Environment
Studies
Validity
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Summary:Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged from the considerable body of research on interviewing and self-report. Limitations in current recommendations are addressed from the perspective of the cognition of self-report. The review describes conceptual directions for the reconciliation of the two contradictory themes in the treatment of self-report: the centrality given to personal perceptions and choices and the methodological concerns over the meaningfulness and validity of the self-reporting process.
ISSN:1934-9556
1934-9491
1934-9556
DOI:10.1352/1934-9556-50.4.352