Palliative care for advanced Parkinson disease: An interdisciplinary clinic and new scale, the ESAS-PD

• Published in: Parkinsonism & related disorders 2012-12, Vol.18, p.S6-S9
• Main Authors: Miyasaki, Janis M, Long, J, Mancini, D, Moro, E, Fox, S.H, Lang, A.E, Marras, C, Chen, R, Strafella, A, Arshinoff, R, Ghoche, R, Hui, J
• Format: Article
• Language: English
• Subjects: Aged; Aged, 80 and over; Ambulatory Care Facilities; Female; Humans; Interdisciplinary care; Male; Middle Aged; Neurology; Non-motor management; Pain; Palliative care; Palliative Care - methods; Parkinson Disease - diagnosis; Parkinson Disease - epidemiology; Parkinson Disease - therapy; Parkinson's disease; Patient Care Team; Severity of Illness Index
• ISSN: 1353-8020; 1873-5126
• DOI: 10.1016/j.parkreldis.2012.06.013

Abstract Palliative care provides a holistic approach to symptom relief using a multidisciplinary team approach to enhance quality of life throughout the entire course of a particular illness. The care team consists of movement disorders neurologist, a palliative care physician, a wound care nurse, a spiritual counselor and a care coordinator. Palliative care concepts were applied to a group of advanced Parkinson disease (PD) patients in a dedicated Palliative Care Clinic. Methods A modified Edmonton Symptom Assessment System Scale for PD (ESAS-PD) was developed and applied to 65 PD patients at their initial consultation and following recommended interventions. Scores were compared to those of metastatic cancer patients reported in the palliative care literature. Results The ESAS-PD scores significantly improved after the interventions (56 and 40 respectively, p  = 0.0001). The most improved items were constipation, dysphagia, anxiety, pain and drowsiness. ESAS-PD scores were not significantly different from metastatic cancer patients' ESAS scores. Conclusions ESAS-PD is a quick, effective scale for assessment of late stage PD symptoms. Scores are sensitive to intervention, and therefore have potential clinical utility for physicians and other healthcare providers. Advanced PD patients have a similar degree of symptoms as metastatic cancer patients, respond to treatment in a similar way, and therefore should have access to palliative care services.