Improving the Standard of Care for People with Ankylosing Spondylitis and a New Approach to Developing Specialist ESP-Led AS Clinics

• Published in: Musculoskeletal care 2012-09, Vol.10 (3), p.171-177
• Main Authors: Van Rossen, Liz, Withrington, Robin H.
• Format: Article
• Language: English
• Subjects: Algorithms; Ambulatory Care Facilities - organization & administration; Ankylosing spondylitis; biologic therapy; cost effectiveness; Cost-Benefit Analysis; development; Humans; multidisciplinary team; outcomes; patient satisfaction; Physical Therapy Modalities - standards; Physical Therapy Specialty - standards; physiotherapy; Referral and Consultation; specialist clinic; Spondylitis, Ankylosing - rehabilitation; Standard of Care; United Kingdom
• ISSN: 1478-2189; 1557-0681
• DOI: 10.1002/msc.1015

Objectives In the UK, there is a wide variation in the quality of care that people with ankylosing spondylitis (AS) receive. People with AS require early diagnosis and referral to a specialist team to commence treatment and optimize outcome. Methods At East Kent Hospitals University Foundation Trust, a specialist clinic led by an extended scope practitioner (ESP) physiotherapist has been set up for the assessment and monitoring of patients with AS. This report describes the service provided by the AS clinic. Results Over eight years, the number of patients seen has risen from 62 to 352, and annual consultations from 186 to 986, with an average of 2.8 visits per patient per year. Ninety‐seven patients have started treatment with a Tumour Necrosis Factor (TNF) blocker. The service has expanded by the addition of a support worker and biologic clinics. Conclusion For the Trust, the specialist service provides an improved quality of care and cost‐effective use of staff resources. Evaluation has demonstrated that patients welcome the new service. Copyright © 2012 John Wiley & Sons, Ltd.