Validation of a stoma-specific quality of life questionnaire in a sample of patients with colostomy or ileostomy

• Published in: Colorectal disease 2013-11, Vol.15 (11), p.e692-e698
• Main Authors: Canova, C., Giorato, E., Roveron, G., Turrini, P., Zanotti, R.
• Format: Article
• Language: English
• Subjects: Adult; Aged; Aged, 80 and over; Body Image - psychology; colon cancer; Colostomy - psychology; Cross-Sectional Studies; Female; Humans; Ileostomy - psychology; Interpersonal Relations; Italy; Male; Middle Aged; ostomy; quality of life; Quality of Life - psychology; Rasch analysis; Reproducibility of Results; Stoma; Surveys and Questionnaires; validation; Young Adult
• ISSN: 1462-8910; 1463-1318
• DOI: 10.1111/codi.12324

Aim The aim of this study was to determine how socio‐demographic and clinical variables affect quality of life (QoL) and to assess the validity of a 20‐item scale in a sample of Italian subjects with colostomy, ileostomy and multiple stomata. Method A cross‐sectional multicentre survey was carried out in Italy between 2009 and 2010 in 73 stoma centres coordinated by the University of Padova. Patients aged 18 years old and above with a history of nontemporary stoma were included in the study. The Stoma Care QoL scale was measured and validated using a Rasch model. Socio‐demographic and clinical characteristics were considered in the analyses. Results Two hundred and fifty‐one patients were recruited for the study; the mean age was 62 years, 58% were men, 72% had colostomy and 25% ileostomy; approximately 70% of patients had intestinal cancer requiring a stoma, 13% a complication and 10% an inflammatory disease. No significant differences were observed throughout strata in the Stoma Care QoL scale index, except for geographical area, where subjects from south Italy showed a significantly lower index than subjects living in other parts of Italy (P