First symposium of ichthyosis experts

On June 22, 2012 the First Symposium of Ichthyosis Experts in Spain was held at the Hospital Niño de Jesús in Madrid. It was a one-day symposium for dermatologists, pediatricians, and physicians-in-training interested in this disease, as well as for other health care professionals involved in the ca...

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Bibliographic Details
Published in:Actas dermo-sifiliográficas (English ed.) 2013-12, Vol.104 (10), p.877-882
Main Authors: Hernández-Martín, A, Torrelo-Fernández, A, de Lucas-Laguna, R, Casco, F, González-Sarmiento, R, Vega, A, Pedreira-Massa, J L, de Unamuno-Pérez, P, Larcher, F, Arroyo, I, Traupe, H
Format: Article
Language:eng ; spa
Subjects:
Congresses as Topic
Humans
Ichthyosis - diagnosis
Ichthyosis - therapy
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Summary:On June 22, 2012 the First Symposium of Ichthyosis Experts in Spain was held at the Hospital Niño de Jesús in Madrid. It was a one-day symposium for dermatologists, pediatricians, and physicians-in-training interested in this disease, as well as for other health care professionals involved in the care of patients with ichthyosis. The aim of the meeting was to try to structure the care of ichthyosis patients in Spain. As happens in other rare diseases, because of the low prevalence of ichthyosis and the absence of designated referral centers, the number of patients treated in each center is very low and few dermatologists have any real clinical experience with this condition or know how to order diagnostic genetic tests. This article summarizes the presentations given at the symposium and is intended as a reference for anyone interested in the subject.
ISSN:1578-2190
DOI:10.1016/j.ad.2012.11.018