The voices of young New Zealanders involved in pediatric palliative care

The perspectives of young New Zealanders receiving pediatric palliative care (PPC) are not well understood. A qualitative study of the perceptions of 16 PPC patients and their siblings, aged 9 to 18, was conducted through audio and written diary accounts. Inductive thematic analysis revealed several...

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Bibliographic Details
Published in:Journal of palliative care 2013-09, Vol.29 (3), p.186-192
Main Authors: Gaab, Erin M, Owens, R Glynn, MacLeod, Roderick D
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adolescent
Anthropology, Cultural
Child
Family Relations
Female
Humans
Male
Narration
New Zealand
Palliative Care
Patients
Pediatrics
Perceptions
Qualitative research
Siblings
Social work
Terminally Ill - psychology
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Summary:The perspectives of young New Zealanders receiving pediatric palliative care (PPC) are not well understood. A qualitative study of the perceptions of 16 PPC patients and their siblings, aged 9 to 18, was conducted through audio and written diary accounts. Inductive thematic analysis revealed several concerns. of participants, including special treatment that patients had received, spending time with their families, their feelings of being judged or discriminated against, their sense of being understood themselves and of understanding others, and mortality. A nonjudgemental, open approach is recommended when consulting with patients and their siblings in order to determine their needs.
ISSN:0825-8597
2369-5293
DOI:10.1177/082585971302900308