"I'm not a patient, I'm a person": The Experiences of Individuals With Intellectual Disabilities and Challenging Behavior-A Thematic Synthesis of Qualitative Studies

Individuals with intellectual disabilities (ID) and challenging behavior often have complex care needs and may be reliant on care support services. This thematic synthesis examines published qualitative research on the experiences of individuals with ID in relation to received service supports and i...

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Bibliographic Details
Published in:Clinical psychology (New York, N.Y.) N.Y.), 2013-12, Vol.20 (4), p.469-488
Main Authors: Griffith, Gemma M., Hutchinson, Lisa, Hastings, Richard P.
Format: Article
Language:English
Subjects:
Behavior
Behavior Problems
challenging behavior
Cognitive Ability
Disabilities
Female
Human
intellectual disabilities
Intervention
Life Experiences
Male
qualitative
Qualitative Methods
Qualitative research
support services
synthesis
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Summary:Individuals with intellectual disabilities (ID) and challenging behavior often have complex care needs and may be reliant on care support services. This thematic synthesis examines published qualitative research on the experiences of individuals with ID in relation to received service supports and interventions. Seventeen studies met criteria. Four themes emerged: (1) Imbalance of power, (2) Causal attributions about challenging behavior, (3) Experiences of restrictive interventions, and (4) Opportunities for improvement: proactive interventions. The accumulative stressors of living in a residential placement were regarded as a cause of continued challenging behaviors. The impersonal attitude of support staff was regarded as a major contributory factor. The findings can inform service providers about how best to support individuals with ID and challenging behavior.
ISSN:0969-5893
1468-2850
DOI:10.1111/cpsp.12053