Ethical issues policy statement on Huntington's disease molecular genetics predictive test

The present document provides realistic ethical principles based on current knowledge and techniques in molecular genetics. As there is no way of knowing when the HD gene will be identified, and the predictive linkage test is currently in use in an increasing number of centers, it is appropriate to...

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Bibliographic Details
Published in:Journal of medical genetics 1990, Vol.27 (1), p.34-38
Main Authors: DE SOMVIELE, C, WENT, L, REILLY, P, HAYDEN, M, WALKER, R, PETIT, H, FARMER-LITTLE, C, KRAHNEN, K, TYLER, A, BATES, L, FALEK, A, MYERS, R, MYRIANTHOPOULOS, N
Format: Article
Language:English
Subjects:
Biological and medical sciences
Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases
Medical sciences
Neurology
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Summary:The present document provides realistic ethical principles based on current knowledge and techniques in molecular genetics. As there is no way of knowing when the HD gene will be identified, and the predictive linkage test is currently in use in an increasing number of centers, it is appropriate to provide these guidelines to govern the application of the predictive test. The test should only be offered if all the recommended provisions are available.
ISSN:0022-2593
1468-6244
DOI:10.1136/jmg.27.1.34