Engaging communities in tuberculosis research

• Published in: The Lancet infectious diseases 2013-06, Vol.13 (6), p.540-545
• Main Authors: Boulanger, Renaud F, BA, Seidel, Stephanie, BA, Lessem, Erica, MPH, Pyne-Mercier, Lee, MPH, Williams, Sharon D, BS, Mingote, Laia Ruiz, BA, Scott, Cherise, PhD, Chou, Alicia Y, MS, Lavery, James V, Dr
• Format: Article
• Language: English
• Subjects: Antitubercular Agents - standards; Antitubercular Agents - therapeutic use; Bacterial diseases; Biological and medical sciences; Biomedical Research; Clinical Trials as Topic; Community involvement; Community-Based Participatory Research; Consensus; Cooperative Behavior; Human bacterial diseases; Human immunodeficiency virus; Humans; Infectious Disease; Infectious diseases; Medical sciences; Mycobacterium; Resource allocation; Tuberculosis; Tuberculosis - drug therapy; Tuberculosis and atypical mycobacterial infections
• ISSN: 1473-3099; 1474-4457
• DOI: 10.1016/S1473-3099(13)70042-2

Summary According to a growing consensus among biomedical researchers, community engagement can improve the ethics and outcomes of clinical trials. Although successful efforts to develop community engagement practices in HIV/AIDS research have been reported, little attention has been given to engagement with the community in tuberculosis research. This article aims to draw attention to some existing community engagement initiatives in tuberculosis research and to resources that might help tuberculosis researchers to establish and implement community engagement programmes for their trials. One of these resources—the good participatory practice guidelines for tuberculosis drug trials—offers a conceptual framework and practical guidance for community engagement in tuberculosis research. To build momentum and to improve community engagement, lessons need to be shared, and formal assessment strategies for community engagement initiatives need to be developed. To build successfully on the promising activities described in this personal view, research funders and sponsors should show leadership in allocation of resources for the implementation and assessment of community engagement programmes in tuberculosis trials.