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Shared Decision-Making in Pediatric Intensive Care Units: A Qualitative Study with Physicians, Nurses and Parents
Objectives To understand how decisions are made in Intensive Care Unit (ICU) settings where critically-ill children require life-support decisions and what are the perceptions of health professionals and parents. Methods In this qualitative study, in-depth, semi-structured, face to face interviews w...
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Published in: | Indian journal of pediatrics 2014-12, Vol.81 (12), p.1287-1292 |
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container_end_page | 1292 |
container_issue | 12 |
container_start_page | 1287 |
container_title | Indian journal of pediatrics |
container_volume | 81 |
creator | Kahveci, Rabia Ayhan, Duygu Döner, Pınar Cihan, Fatma Gökşin Koç, Esra Meltem |
description | Objectives
To understand how decisions are made in Intensive Care Unit (ICU) settings where critically-ill children require life-support decisions and what are the perceptions of health professionals and parents.
Methods
In this qualitative study, in-depth, semi-structured, face to face interviews with 8 doctors, 9 nurses and 6 parents of critically ill children were conducted. Interviews were digitally recorded and transcribed. The transcriptions were further analyzed following open coding and formation of themes.
Results
The themes were discussed in two major titles: perceived roles and emotions during the decision-making process. All nurses and patients agreed that the decision maker should be the physician. Nurses understood patients’ emotions better and had a closer relation with the parents. Both doctors and nurses thought that parents could not have all responsibilities about treatment choices, because they do not have the required knowledge. Similarly parents were afraid to make a wrong decision, thus they wanted to leave this to the doctors.
Conclusions
The present study revealed that shared-decision making is not well understood by health care professionals in Turkey. Doctor is the major decision-making authority and this is also accepted and preferred by the patients and nurses. |
doi_str_mv | 10.1007/s12098-014-1431-6 |
format | article |
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To understand how decisions are made in Intensive Care Unit (ICU) settings where critically-ill children require life-support decisions and what are the perceptions of health professionals and parents.
Methods
In this qualitative study, in-depth, semi-structured, face to face interviews with 8 doctors, 9 nurses and 6 parents of critically ill children were conducted. Interviews were digitally recorded and transcribed. The transcriptions were further analyzed following open coding and formation of themes.
Results
The themes were discussed in two major titles: perceived roles and emotions during the decision-making process. All nurses and patients agreed that the decision maker should be the physician. Nurses understood patients’ emotions better and had a closer relation with the parents. Both doctors and nurses thought that parents could not have all responsibilities about treatment choices, because they do not have the required knowledge. Similarly parents were afraid to make a wrong decision, thus they wanted to leave this to the doctors.
Conclusions
The present study revealed that shared-decision making is not well understood by health care professionals in Turkey. Doctor is the major decision-making authority and this is also accepted and preferred by the patients and nurses.</description><identifier>ISSN: 0019-5456</identifier><identifier>EISSN: 0973-7693</identifier><identifier>DOI: 10.1007/s12098-014-1431-6</identifier><identifier>PMID: 24752630</identifier><identifier>CODEN: IJPEA2</identifier><language>eng</language><publisher>India: Springer India</publisher><subject>Biological and medical sciences ; Child, Preschool ; Critical Care - methods ; Critical Illness - therapy ; Decision Making ; Female ; General aspects ; Gynecology ; Humans ; Infant ; Intensive Care Units, Pediatric ; Male ; Medical sciences ; Medicine ; Medicine & Public Health ; Nurses - psychology ; Original Article ; Parents - psychology ; Pediatrics ; Physicians - psychology ; Qualitative Research ; Turkey</subject><ispartof>Indian journal of pediatrics, 2014-12, Vol.81 (12), p.1287-1292</ispartof><rights>Dr. K C Chaudhuri Foundation 2014</rights><rights>2015 INIST-CNRS</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c407t-429dedbeb2f4707254d0f0aa4eeb7e4e496a792903712ac441ce3721759c67d73</citedby><cites>FETCH-LOGICAL-c407t-429dedbeb2f4707254d0f0aa4eeb7e4e496a792903712ac441ce3721759c67d73</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27923,27924</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=29069942$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/24752630$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Kahveci, Rabia</creatorcontrib><creatorcontrib>Ayhan, Duygu</creatorcontrib><creatorcontrib>Döner, Pınar</creatorcontrib><creatorcontrib>Cihan, Fatma Gökşin</creatorcontrib><creatorcontrib>Koç, Esra Meltem</creatorcontrib><title>Shared Decision-Making in Pediatric Intensive Care Units: A Qualitative Study with Physicians, Nurses and Parents</title><title>Indian journal of pediatrics</title><addtitle>Indian J Pediatr</addtitle><addtitle>Indian J Pediatr</addtitle><description>Objectives
To understand how decisions are made in Intensive Care Unit (ICU) settings where critically-ill children require life-support decisions and what are the perceptions of health professionals and parents.
Methods
In this qualitative study, in-depth, semi-structured, face to face interviews with 8 doctors, 9 nurses and 6 parents of critically ill children were conducted. Interviews were digitally recorded and transcribed. The transcriptions were further analyzed following open coding and formation of themes.
Results
The themes were discussed in two major titles: perceived roles and emotions during the decision-making process. All nurses and patients agreed that the decision maker should be the physician. Nurses understood patients’ emotions better and had a closer relation with the parents. Both doctors and nurses thought that parents could not have all responsibilities about treatment choices, because they do not have the required knowledge. Similarly parents were afraid to make a wrong decision, thus they wanted to leave this to the doctors.
Conclusions
The present study revealed that shared-decision making is not well understood by health care professionals in Turkey. Doctor is the major decision-making authority and this is also accepted and preferred by the patients and nurses.</description><subject>Biological and medical sciences</subject><subject>Child, Preschool</subject><subject>Critical Care - methods</subject><subject>Critical Illness - therapy</subject><subject>Decision Making</subject><subject>Female</subject><subject>General aspects</subject><subject>Gynecology</subject><subject>Humans</subject><subject>Infant</subject><subject>Intensive Care Units, Pediatric</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Nurses - psychology</subject><subject>Original Article</subject><subject>Parents - psychology</subject><subject>Pediatrics</subject><subject>Physicians - psychology</subject><subject>Qualitative Research</subject><subject>Turkey</subject><issn>0019-5456</issn><issn>0973-7693</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><recordid>eNp9kU2PFCEQhonRuB_6A7wYLiYeRIGmQbxtRlc3WXXMumfCQPUOaw-9S9Ga-fcymVFvnoqknrcq9UDIM8FfC87NGxSS27eMC8WE6gTTD8gxt6ZjRtvuYXtzYVmven1EThBvOZeWa_uYHElleqk7fkzur9a-QKTvISRMU2af_Y-Ub2jKdAkx-VpSoBe5Qsb0E-iiwfQ6p4rv6Bn9NvsxVV93nas6xy39leqaLtdbTCH5jK_ol7kgIPU50mXL5opPyKPBjwhPD_WUXJ9_-L74xC6_frxYnF2yoLipTEkbIa5gJQdluJG9inzg3iuAlQEFympvbDuoM0L6oJQI0BkpTG-DNtF0p-Tlfu5dme5nwOo2CQOMo88wzeiE7pTUVlnRULFHQ5kQCwzurqSNL1snuNuZdnvTrpl2O9NOt8zzw_h5tYH4N_FHbQNeHACPwY9D8bkp_sftvsIq2Ti557C18g0UdzvNJTc1_9n-GyIYlcI</recordid><startdate>20141201</startdate><enddate>20141201</enddate><creator>Kahveci, Rabia</creator><creator>Ayhan, Duygu</creator><creator>Döner, Pınar</creator><creator>Cihan, Fatma Gökşin</creator><creator>Koç, Esra Meltem</creator><general>Springer India</general><general>Springer</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20141201</creationdate><title>Shared Decision-Making in Pediatric Intensive Care Units: A Qualitative Study with Physicians, Nurses and Parents</title><author>Kahveci, Rabia ; Ayhan, Duygu ; Döner, Pınar ; Cihan, Fatma Gökşin ; Koç, Esra Meltem</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c407t-429dedbeb2f4707254d0f0aa4eeb7e4e496a792903712ac441ce3721759c67d73</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2014</creationdate><topic>Biological and medical sciences</topic><topic>Child, Preschool</topic><topic>Critical Care - methods</topic><topic>Critical Illness - therapy</topic><topic>Decision Making</topic><topic>Female</topic><topic>General aspects</topic><topic>Gynecology</topic><topic>Humans</topic><topic>Infant</topic><topic>Intensive Care Units, Pediatric</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Nurses - psychology</topic><topic>Original Article</topic><topic>Parents - psychology</topic><topic>Pediatrics</topic><topic>Physicians - psychology</topic><topic>Qualitative Research</topic><topic>Turkey</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Kahveci, Rabia</creatorcontrib><creatorcontrib>Ayhan, Duygu</creatorcontrib><creatorcontrib>Döner, Pınar</creatorcontrib><creatorcontrib>Cihan, Fatma Gökşin</creatorcontrib><creatorcontrib>Koç, Esra Meltem</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Indian journal of pediatrics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Kahveci, Rabia</au><au>Ayhan, Duygu</au><au>Döner, Pınar</au><au>Cihan, Fatma Gökşin</au><au>Koç, Esra Meltem</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Shared Decision-Making in Pediatric Intensive Care Units: A Qualitative Study with Physicians, Nurses and Parents</atitle><jtitle>Indian journal of pediatrics</jtitle><stitle>Indian J Pediatr</stitle><addtitle>Indian J Pediatr</addtitle><date>2014-12-01</date><risdate>2014</risdate><volume>81</volume><issue>12</issue><spage>1287</spage><epage>1292</epage><pages>1287-1292</pages><issn>0019-5456</issn><eissn>0973-7693</eissn><coden>IJPEA2</coden><abstract>Objectives
To understand how decisions are made in Intensive Care Unit (ICU) settings where critically-ill children require life-support decisions and what are the perceptions of health professionals and parents.
Methods
In this qualitative study, in-depth, semi-structured, face to face interviews with 8 doctors, 9 nurses and 6 parents of critically ill children were conducted. Interviews were digitally recorded and transcribed. The transcriptions were further analyzed following open coding and formation of themes.
Results
The themes were discussed in two major titles: perceived roles and emotions during the decision-making process. All nurses and patients agreed that the decision maker should be the physician. Nurses understood patients’ emotions better and had a closer relation with the parents. Both doctors and nurses thought that parents could not have all responsibilities about treatment choices, because they do not have the required knowledge. Similarly parents were afraid to make a wrong decision, thus they wanted to leave this to the doctors.
Conclusions
The present study revealed that shared-decision making is not well understood by health care professionals in Turkey. Doctor is the major decision-making authority and this is also accepted and preferred by the patients and nurses.</abstract><cop>India</cop><pub>Springer India</pub><pmid>24752630</pmid><doi>10.1007/s12098-014-1431-6</doi><tpages>6</tpages></addata></record> |
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subjects | Biological and medical sciences Child, Preschool Critical Care - methods Critical Illness - therapy Decision Making Female General aspects Gynecology Humans Infant Intensive Care Units, Pediatric Male Medical sciences Medicine Medicine & Public Health Nurses - psychology Original Article Parents - psychology Pediatrics Physicians - psychology Qualitative Research Turkey |
title | Shared Decision-Making in Pediatric Intensive Care Units: A Qualitative Study with Physicians, Nurses and Parents |
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