Striving to Live a Normal Life: A Review of Children and Young People’s Experience of Feeling Different when Living with a Long Term Condition

This paper presents a review of findings from qualitative studies on children’s experience of feeling different when living with the long term conditions; diabetes, epilepsy and asthma. Following electronic database and hand searches of reference lists of identified papers, eighteen studies were sel...

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Bibliographic Details
Published in:Journal of pediatric nursing 2015-01, Vol.30 (1), p.63-77
Main Authors: Lambert, Veronica, Keogh, Deborah
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adolescent
Age Factors
Asthma
Child
Children
Children & youth
Chronic Disease - psychology
Chronic Disease - therapy
Communication
Diabetes
Emotions
Epilepsy
Feeling different
Female
Health
Health Status
Humans
Ireland
Literature review
Long-Term Care
Long-term condition
Male
Normalcy
Nursing
Pediatrics
Qualitative Research
Quality of Life
Risk Assessment
Sex Factors
Social Stigma
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Summary:This paper presents a review of findings from qualitative studies on children’s experience of feeling different when living with the long term conditions; diabetes, epilepsy and asthma. Following electronic database and hand searches of reference lists of identified papers, eighteen studies were selected for inclusion in the review. These studies revealed three common themes; participation in everyday life-restrictions and adjustments; treatment regimens—constraining and enabling; and communication—disclosure, stigma and support. Across these themes it was evident that children felt different physically and socially and they grappled constantly with balancing the dilemma of feeling and acting normal or feeling, being and revealing difference.
ISSN:0882-5963
1532-8449
DOI:10.1016/j.pedn.2014.09.016