The Feasibility and Educational Value of Hear My Voice, a Chaplain-Led Spiritual Life Review Process for Patients with Brain Cancers and Progressive Neurologic Conditions

Research continues to establish the importance of spirituality for many persons with medical illnesses. This paper describes a pilot study titled, “Hear My Voice,” designed to provide an opportunity for persons with progressive neurologic illnesses, including brain tumors and other neurodegenerative...

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Bibliographic Details
Published in:Journal of cancer education 2015-06, Vol.30 (2), p.209-212
Main Authors: Piderman, Katherine M., Radecki Breitkopf, Carmen, Jenkins, Sarah M., Lovejoy, Laura A., Dulohery, Yvette M., Marek, Dean V., Durland, Heidi L., Head, Debra L., Swanson, Spence W., Hogg, James T., Evans, John L., Jorgenson, Scott E., Bunkowski, Laura J., Jones, Karl L., Euerle, Terin T., Kwete, Gracia M., Miller, Keith A., Morris, Jacob R., Yoder, Timothy J., Lapid, Maria I., Jatoi, Aminah
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adult
Biomedical and Life Sciences
Biomedicine
Brain
Brain cancer
Brain Neoplasms - pathology
Brain Neoplasms - prevention & control
Brain Neoplasms - psychology
Cancer Research
Clergy
Communication Skills
Community Relations
Education
Educational Benefits
Feasibility
Feasibility Studies
Female
Follow-Up Studies
Health Sciences
Humans
Internal Medicine
Interviews
Male
Oncology
Opportunities
Patients
Pharmacology/Toxicology
Pilot Projects
Prognosis
Quality of Life
Referral
Religious Factors
Resistance (Psychology)
Semi Structured Interviews
Spirituality
Stress, Psychological
Surveys and Questionnaires
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Summary:Research continues to establish the importance of spirituality for many persons with medical illnesses. This paper describes a pilot study titled, “Hear My Voice,” designed to provide an opportunity for persons with progressive neurologic illnesses, including brain tumors and other neurodegenerative diseases, to review and discuss their spirituality with a board-certified chaplain, and to prepare a spiritual legacy document (SLD). First, we provide background information that underscores the importance of such a project for this patient population that is particularly vulnerable to cognitive impairment and communication difficulties. Second, we provide detailed methodology, including the semi-structured interview format used, the development of the SLD, and an overview of responses from participants and investigators. We also describe the quantitative and qualitative approaches to analysis taken with the aim of developing scientific validation in support of the Hear My Voice project.
ISSN:0885-8195
1543-0154
DOI:10.1007/s13187-014-0686-y