Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder?

There is no reported investigation comparing concordance in attitudes and beliefs about autism spectrum disorder between parents of children with autism spectrum disorder and scientists who research autism spectrum disorder. To investigate the level of concordance between these groups on causes of a...

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Bibliographic Details
Published in:Autism : the international journal of research and practice 2016-04, Vol.20 (3), p.353-363
Main Authors: Fischbach, Ruth L, Harris, Mark J, Ballan, Michelle S, Fischbach, Gerald D, Link, Bruce G
Format: Article
Language:English
Subjects:
Adult
Attitudes
Autism
Autism Spectrum Disorder - psychology
Autistic children
Beliefs
Biomedical Research
Communication
Communication (Thought Transfer)
Comparative Analysis
Female
Genetic testing
Genetics
Health Knowledge, Attitudes, Practice
Humans
Immunization Programs
Interviews
Investigations
Male
Middle Aged
Negative Attitudes
Parent Attitudes
Parents & parenting
Parents - psychology
Pervasive Developmental Disorders
Science
Scientists
Social Stigma
Stigma
Surveys
Vaccines
Well being
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Summary:There is no reported investigation comparing concordance in attitudes and beliefs about autism spectrum disorder between parents of children with autism spectrum disorder and scientists who research autism spectrum disorder. To investigate the level of concordance between these groups on causes of autism, priorities of research, perceived stigma, and disclosure of genetic test results, telephone interviews were conducted. Parents (n = 502) were recruited from the Simons Simplex Collection, and research scientists (n = 60) were recruited from investigators funded by the Simons Foundation. Response rates were notable (parents 91%, scientists 80%). Parents and scientists differed significantly regarding beliefs of the likely major cause of autism (p = 0.007) and priorities for further research (p 
ISSN:1362-3613
1461-7005
DOI:10.1177/1362361315585310