Parental attitudes to clinical studies in healthy siblings

[...]they should be aware that they will be helping other children in new treatment in future Yes, but at an age in which the child could make a decision and understand the reasons for the treatment If it is going to benefit the sibling taking Cortisol It depends if the child is mature enough to und...

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Bibliographic Details
Published in:Archives of disease in childhood 2015-11, Vol.100 (11), p.1096-1097
Main Authors: Blair, J C, Povall, A, Richardson, P, Peak, M
Format: Article
Language:English
Subjects:
Adrenal Insufficiency - drug therapy
Attitude to Health
Child
Child Health
Children & youth
Childrens Rights
Eligibility
Families & family life
Family (Sociological Unit)
Human Experimentation
Humans
Hydrocortisone - therapeutic use
Parent Attitudes
Parents - psychology
Questionnaires
Reference Values
Siblings
Siblings - psychology
Studies
Young Adults
Young Children
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Summary:[...]they should be aware that they will be helping other children in new treatment in future Yes, but at an age in which the child could make a decision and understand the reasons for the treatment If it is going to benefit the sibling taking Cortisol It depends if the child is mature enough to understand the reason of the research study Yes, but only if they understand what is involved and are happy to do it If the child is willing Yes, if it helps with research Yes, if they agree I understand why it may be helpful to the study but the healthy child may not, and may resent having it done Possibly These data demonstrate that research in unaffected siblings has a very high level of acceptability in families with affected children and strengthens our proposal to study healthy children to establish robust normative data.
ISSN:0003-9888
1468-2044
DOI:10.1136/archdischild-2015-308938