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Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients
Objective To determine the satisfaction with information received by prostate cancer survivors and associations with health‐related quality of life (HRQoL) and illness perception. Methods A cross‐sectional study was performed among 999 patients diagnosed between 2006 and 2009. All patients received...
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| Published in: | Psycho-oncology (Chichester, England) England), 2016-06, Vol.25 (6), p.633-640 |
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| container_end_page | 640 |
| container_issue | 6 |
| container_start_page | 633 |
| container_title | Psycho-oncology (Chichester, England) |
| container_volume | 25 |
| creator | Lamers, Romy E. D. Cuypers, Maarten Husson, Olga de Vries, Marieke Kil, Paul J. M. Ruud Bosch, J. L. H. van de Poll-Franse, Lonneke V. |
| description | Objective
To determine the satisfaction with information received by prostate cancer survivors and associations with health‐related quality of life (HRQoL) and illness perception.
Methods
A cross‐sectional study was performed among 999 patients diagnosed between 2006 and 2009. All patients received a questionnaire on HRQoL (EORTC QLQ‐C30), illness perception (B‐IPQ) and satisfaction with information provision (EORTC QLQ‐INFO‐25). Multivariate regression analyses were performed to assess the association between satisfaction with information provision and HRQoL as well as illness perception.
Results
Response rate was 70% (N = 697), 34% (N = 222) indicated to be dissatisfied with the information received. Multivariate linear regression analyses showed a significant positive association between satisfaction with information provision and global health (P = |
| doi_str_mv | 10.1002/pon.3981 |
| format | article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_1818330250</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>4086450381</sourcerecordid><originalsourceid>FETCH-LOGICAL-c5181-487120a5b319c37b6e26e0bea160115e1e05657c720b7c14a29c793c3a6fb0b63</originalsourceid><addsrcrecordid>eNqF0dtu1DAQBmALUdEDSDwBssQNNykeO7Zj7lBFC1LZVtUCl5bjnQiXbJLaSdt9gL43XjVUFeJw5YM-_ePxEPIS2CEwxt8OfXcoTAVPyB4wYwpQAE-3e6kLw0uzS_ZTumQsY6OekV2uSiZK0Hvk7tyNAbsxUReRrkJK-ZyagCt6E8bvNHRNH9f5ru_oEPvrkPLuHR0wegzXWf0RUNet6NXk2jBuaN_QNjSY5Rak0Y1Ives8RjrMxZ-Tnca1CV_M6wH5cvxhefSxOD07-XT0_rTwEiooykoDZ07WAowXulbIFbIaHSgGIBGQSSW115zV2kPpuPHaCC-campWK3FA3tzn5odcTZhGuw7JY9u6Dvsp2VykEoJxyf5PtVGqUqB5pq9_o5f9FLvciOU5jMtSyOpfKmfJCpRhj8r6_FUpYmOHGNYubiwwu521zbO221ln-moOnOo1rh7gr-FmUNyDm9Di5q9B9vxsMQfOPqQRbx-8iz-s0kJL-21xYuXy68ViefE5t_YTQlrCSQ</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1795816900</pqid></control><display><type>article</type><title>Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients</title><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>Wiley</source><creator>Lamers, Romy E. D. ; Cuypers, Maarten ; Husson, Olga ; de Vries, Marieke ; Kil, Paul J. M. ; Ruud Bosch, J. L. H. ; van de Poll-Franse, Lonneke V.</creator><creatorcontrib>Lamers, Romy E. D. ; Cuypers, Maarten ; Husson, Olga ; de Vries, Marieke ; Kil, Paul J. M. ; Ruud Bosch, J. L. H. ; van de Poll-Franse, Lonneke V.</creatorcontrib><description>Objective
To determine the satisfaction with information received by prostate cancer survivors and associations with health‐related quality of life (HRQoL) and illness perception.
Methods
A cross‐sectional study was performed among 999 patients diagnosed between 2006 and 2009. All patients received a questionnaire on HRQoL (EORTC QLQ‐C30), illness perception (B‐IPQ) and satisfaction with information provision (EORTC QLQ‐INFO‐25). Multivariate regression analyses were performed to assess the association between satisfaction with information provision and HRQoL as well as illness perception.
Results
Response rate was 70% (N = 697), 34% (N = 222) indicated to be dissatisfied with the information received. Multivariate linear regression analyses showed a significant positive association between satisfaction with information provision and global health (P = <0.001), emotional functioning (P = 0.004), social functioning (P = 0.027), physical functioning (P = 0.002) and role functioning (P = 0.001). Satisfaction was negatively associated with illness perception subscales on consequences (P = 0.020), timeline (P = 0.031), personal control (P = 0.013), treatment control (P < 0.001), illness concern (P < 0.001), coherence (P = 0.001) and emotional representation (P = 0.004). Hence, more satisfied patients reported fewer consequences of disease, illness concern and emotional representation, but higher personal and treatment control and coherence.
Conclusions
A third of all prostate cancer survivors reported to be dissatisfied with the information received and scored worse on HRQoL and illness perception. A prospective randomized study is needed to study the effect of an intervention that improves information provision on HRQoL and illness perception outcomes. Copyright © 2015 John Wiley & Sons, Ltd.</description><identifier>ISSN: 1057-9249</identifier><identifier>EISSN: 1099-1611</identifier><identifier>DOI: 10.1002/pon.3981</identifier><identifier>PMID: 26403417</identifier><identifier>CODEN: POJCEE</identifier><language>eng</language><publisher>England: Blackwell Publishing Ltd</publisher><subject>Aged ; Antiretroviral drugs ; Associations ; Coherence ; Cross-Sectional Studies ; Emotional well being ; Emotions ; Functional impairment ; health related quality of life ; Health status ; Humans ; illness perception ; Illnesses ; Information sharing ; Male ; Middle Aged ; oncology ; Patient education ; Patient Education as Topic ; patient information satisfaction ; Patient Satisfaction ; Perceptions ; Personal control ; Physical ability ; Prospective Studies ; Prostate ; Prostate cancer ; Prostatic Neoplasms - psychology ; Quality of life ; Quality of Life - psychology ; Questionnaires ; Response rates ; Social functioning ; Surveys and Questionnaires ; Survivor ; Survivors - psychology</subject><ispartof>Psycho-oncology (Chichester, England), 2016-06, Vol.25 (6), p.633-640</ispartof><rights>Copyright © 2015 John Wiley & Sons, Ltd.</rights><rights>Copyright © 2016 John Wiley & Sons, Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c5181-487120a5b319c37b6e26e0bea160115e1e05657c720b7c14a29c793c3a6fb0b63</citedby><cites>FETCH-LOGICAL-c5181-487120a5b319c37b6e26e0bea160115e1e05657c720b7c14a29c793c3a6fb0b63</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925,30999</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26403417$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Lamers, Romy E. D.</creatorcontrib><creatorcontrib>Cuypers, Maarten</creatorcontrib><creatorcontrib>Husson, Olga</creatorcontrib><creatorcontrib>de Vries, Marieke</creatorcontrib><creatorcontrib>Kil, Paul J. M.</creatorcontrib><creatorcontrib>Ruud Bosch, J. L. H.</creatorcontrib><creatorcontrib>van de Poll-Franse, Lonneke V.</creatorcontrib><title>Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients</title><title>Psycho-oncology (Chichester, England)</title><addtitle>Psycho-Oncology</addtitle><description>Objective
To determine the satisfaction with information received by prostate cancer survivors and associations with health‐related quality of life (HRQoL) and illness perception.
Methods
A cross‐sectional study was performed among 999 patients diagnosed between 2006 and 2009. All patients received a questionnaire on HRQoL (EORTC QLQ‐C30), illness perception (B‐IPQ) and satisfaction with information provision (EORTC QLQ‐INFO‐25). Multivariate regression analyses were performed to assess the association between satisfaction with information provision and HRQoL as well as illness perception.
Results
Response rate was 70% (N = 697), 34% (N = 222) indicated to be dissatisfied with the information received. Multivariate linear regression analyses showed a significant positive association between satisfaction with information provision and global health (P = <0.001), emotional functioning (P = 0.004), social functioning (P = 0.027), physical functioning (P = 0.002) and role functioning (P = 0.001). Satisfaction was negatively associated with illness perception subscales on consequences (P = 0.020), timeline (P = 0.031), personal control (P = 0.013), treatment control (P < 0.001), illness concern (P < 0.001), coherence (P = 0.001) and emotional representation (P = 0.004). Hence, more satisfied patients reported fewer consequences of disease, illness concern and emotional representation, but higher personal and treatment control and coherence.
Conclusions
A third of all prostate cancer survivors reported to be dissatisfied with the information received and scored worse on HRQoL and illness perception. A prospective randomized study is needed to study the effect of an intervention that improves information provision on HRQoL and illness perception outcomes. Copyright © 2015 John Wiley & Sons, Ltd.</description><subject>Aged</subject><subject>Antiretroviral drugs</subject><subject>Associations</subject><subject>Coherence</subject><subject>Cross-Sectional Studies</subject><subject>Emotional well being</subject><subject>Emotions</subject><subject>Functional impairment</subject><subject>health related quality of life</subject><subject>Health status</subject><subject>Humans</subject><subject>illness perception</subject><subject>Illnesses</subject><subject>Information sharing</subject><subject>Male</subject><subject>Middle Aged</subject><subject>oncology</subject><subject>Patient education</subject><subject>Patient Education as Topic</subject><subject>patient information satisfaction</subject><subject>Patient Satisfaction</subject><subject>Perceptions</subject><subject>Personal control</subject><subject>Physical ability</subject><subject>Prospective Studies</subject><subject>Prostate</subject><subject>Prostate cancer</subject><subject>Prostatic Neoplasms - psychology</subject><subject>Quality of life</subject><subject>Quality of Life - psychology</subject><subject>Questionnaires</subject><subject>Response rates</subject><subject>Social functioning</subject><subject>Surveys and Questionnaires</subject><subject>Survivor</subject><subject>Survivors - psychology</subject><issn>1057-9249</issn><issn>1099-1611</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2016</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNqF0dtu1DAQBmALUdEDSDwBssQNNykeO7Zj7lBFC1LZVtUCl5bjnQiXbJLaSdt9gL43XjVUFeJw5YM-_ePxEPIS2CEwxt8OfXcoTAVPyB4wYwpQAE-3e6kLw0uzS_ZTumQsY6OekV2uSiZK0Hvk7tyNAbsxUReRrkJK-ZyagCt6E8bvNHRNH9f5ru_oEPvrkPLuHR0wegzXWf0RUNet6NXk2jBuaN_QNjSY5Rak0Y1Ives8RjrMxZ-Tnca1CV_M6wH5cvxhefSxOD07-XT0_rTwEiooykoDZ07WAowXulbIFbIaHSgGIBGQSSW115zV2kPpuPHaCC-campWK3FA3tzn5odcTZhGuw7JY9u6Dvsp2VykEoJxyf5PtVGqUqB5pq9_o5f9FLvciOU5jMtSyOpfKmfJCpRhj8r6_FUpYmOHGNYubiwwu521zbO221ln-moOnOo1rh7gr-FmUNyDm9Di5q9B9vxsMQfOPqQRbx-8iz-s0kJL-21xYuXy68ViefE5t_YTQlrCSQ</recordid><startdate>201606</startdate><enddate>201606</enddate><creator>Lamers, Romy E. D.</creator><creator>Cuypers, Maarten</creator><creator>Husson, Olga</creator><creator>de Vries, Marieke</creator><creator>Kil, Paul J. M.</creator><creator>Ruud Bosch, J. L. H.</creator><creator>van de Poll-Franse, Lonneke V.</creator><general>Blackwell Publishing Ltd</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>201606</creationdate><title>Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients</title><author>Lamers, Romy E. D. ; Cuypers, Maarten ; Husson, Olga ; de Vries, Marieke ; Kil, Paul J. M. ; Ruud Bosch, J. L. H. ; van de Poll-Franse, Lonneke V.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5181-487120a5b319c37b6e26e0bea160115e1e05657c720b7c14a29c793c3a6fb0b63</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2016</creationdate><topic>Aged</topic><topic>Antiretroviral drugs</topic><topic>Associations</topic><topic>Coherence</topic><topic>Cross-Sectional Studies</topic><topic>Emotional well being</topic><topic>Emotions</topic><topic>Functional impairment</topic><topic>health related quality of life</topic><topic>Health status</topic><topic>Humans</topic><topic>illness perception</topic><topic>Illnesses</topic><topic>Information sharing</topic><topic>Male</topic><topic>Middle Aged</topic><topic>oncology</topic><topic>Patient education</topic><topic>Patient Education as Topic</topic><topic>patient information satisfaction</topic><topic>Patient Satisfaction</topic><topic>Perceptions</topic><topic>Personal control</topic><topic>Physical ability</topic><topic>Prospective Studies</topic><topic>Prostate</topic><topic>Prostate cancer</topic><topic>Prostatic Neoplasms - psychology</topic><topic>Quality of life</topic><topic>Quality of Life - psychology</topic><topic>Questionnaires</topic><topic>Response rates</topic><topic>Social functioning</topic><topic>Surveys and Questionnaires</topic><topic>Survivor</topic><topic>Survivors - psychology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Lamers, Romy E. D.</creatorcontrib><creatorcontrib>Cuypers, Maarten</creatorcontrib><creatorcontrib>Husson, Olga</creatorcontrib><creatorcontrib>de Vries, Marieke</creatorcontrib><creatorcontrib>Kil, Paul J. M.</creatorcontrib><creatorcontrib>Ruud Bosch, J. L. H.</creatorcontrib><creatorcontrib>van de Poll-Franse, Lonneke V.</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Psycho-oncology (Chichester, England)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Lamers, Romy E. D.</au><au>Cuypers, Maarten</au><au>Husson, Olga</au><au>de Vries, Marieke</au><au>Kil, Paul J. M.</au><au>Ruud Bosch, J. L. H.</au><au>van de Poll-Franse, Lonneke V.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients</atitle><jtitle>Psycho-oncology (Chichester, England)</jtitle><addtitle>Psycho-Oncology</addtitle><date>2016-06</date><risdate>2016</risdate><volume>25</volume><issue>6</issue><spage>633</spage><epage>640</epage><pages>633-640</pages><issn>1057-9249</issn><eissn>1099-1611</eissn><coden>POJCEE</coden><abstract>Objective
To determine the satisfaction with information received by prostate cancer survivors and associations with health‐related quality of life (HRQoL) and illness perception.
Methods
A cross‐sectional study was performed among 999 patients diagnosed between 2006 and 2009. All patients received a questionnaire on HRQoL (EORTC QLQ‐C30), illness perception (B‐IPQ) and satisfaction with information provision (EORTC QLQ‐INFO‐25). Multivariate regression analyses were performed to assess the association between satisfaction with information provision and HRQoL as well as illness perception.
Results
Response rate was 70% (N = 697), 34% (N = 222) indicated to be dissatisfied with the information received. Multivariate linear regression analyses showed a significant positive association between satisfaction with information provision and global health (P = <0.001), emotional functioning (P = 0.004), social functioning (P = 0.027), physical functioning (P = 0.002) and role functioning (P = 0.001). Satisfaction was negatively associated with illness perception subscales on consequences (P = 0.020), timeline (P = 0.031), personal control (P = 0.013), treatment control (P < 0.001), illness concern (P < 0.001), coherence (P = 0.001) and emotional representation (P = 0.004). Hence, more satisfied patients reported fewer consequences of disease, illness concern and emotional representation, but higher personal and treatment control and coherence.
Conclusions
A third of all prostate cancer survivors reported to be dissatisfied with the information received and scored worse on HRQoL and illness perception. A prospective randomized study is needed to study the effect of an intervention that improves information provision on HRQoL and illness perception outcomes. Copyright © 2015 John Wiley & Sons, Ltd.</abstract><cop>England</cop><pub>Blackwell Publishing Ltd</pub><pmid>26403417</pmid><doi>10.1002/pon.3981</doi><tpages>8</tpages></addata></record> |
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| ispartof | Psycho-oncology (Chichester, England), 2016-06, Vol.25 (6), p.633-640 |
| issn | 1057-9249 1099-1611 |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Wiley |
| subjects | Aged Antiretroviral drugs Associations Coherence Cross-Sectional Studies Emotional well being Emotions Functional impairment health related quality of life Health status Humans illness perception Illnesses Information sharing Male Middle Aged oncology Patient education Patient Education as Topic patient information satisfaction Patient Satisfaction Perceptions Personal control Physical ability Prospective Studies Prostate Prostate cancer Prostatic Neoplasms - psychology Quality of life Quality of Life - psychology Questionnaires Response rates Social functioning Surveys and Questionnaires Survivor Survivors - psychology |
| title | Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients |
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