Long‐Term Experiences in Cash and Counseling for Young Adults with Intellectual Disabilities: Familial Programme Representative Descriptions

Background Our aim was to explore previously unknown long‐term outcomes of self‐directed personal care services for young adults with intellectual disabilities and limitations in activities of daily living. Materials and Methods The present authors utilized participatory action research and qualitat...

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Bibliographic Details
Published in:Journal of applied research in intellectual disabilities 2017-07, Vol.30 (4), p.573-583
Main Authors: Harry, Melissa L., MacDonald, Lynn, McLuckie, Althea, Battista, Christina, Mahoney, Ellen K., Mahoney, Kevin J.
Format: Article
Language:English
Subjects:
Action Research
Activities of Daily Living
Adult
Caregivers
Caregivers - psychology
Counseling
Counseling Effectiveness
Daily Living Skills
Family Role
Female
Health Services Research
Home Care Services
Humans
Intellectual disabilities
Intellectual Disability
Interviews
Male
Medicaid
Mentally Disabled Persons - psychology
Money Management
participatory action research
Personal grooming
qualitative content analysis
representative descriptions
self‐direction
United States
Young Adult
Young Adults
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Summary:Background Our aim was to explore previously unknown long‐term outcomes of self‐directed personal care services for young adults with intellectual disabilities and limitations in activities of daily living. Materials and Methods The present authors utilized participatory action research and qualitative content analysis in interviewing 11 unpaid familial programme representatives of young adults with intellectual disabilities, ages 23–34, who were eligible for income‐based Medicaid and enrolled five or more years in a Cash and Counseling‐based programme of self‐direction in the United States. Results Young adults are represented as receiving services and supports in a supportive and stable environment, with previously identified short‐term programme benefits evident over the long‐term. Young adults are also transitioning to adulthood at home with their families as primary social support and caregivers, bridging a service gap. Conclusions Our results show that self‐direction helps meet these young adults’ personal care and community engagement needs over time.
ISSN:1360-2322
1468-3148
DOI:10.1111/jar.12251