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Assessing Transplant Attitudes: Understanding Minority Men’s Perspectives on the Multifarious Barriers to Organ Donation
African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear...
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Published in: | Journal of racial and ethnic health disparities 2017-08, Vol.4 (4), p.580-586 |
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creator | Hinck, Bryan D. Naelitz, Bryan D. Jackson, Brielle Howard, Mariah Nowacki, Amy Modlin, Charles S. |
description | African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation—including the belief that they were too old or unhealthy to donate, for example—had lower general, physical, and mental health scores than those who did not (p = |
doi_str_mv | 10.1007/s40615-016-0260-x |
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There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation—including the belief that they were too old or unhealthy to donate, for example—had lower general, physical, and mental health scores than those who did not (p = <0.0001). Minorities aware of the shortage for organs or who know a registered donor, an organ recipient, a dialysis patient, or someone on the waiting list were more willing to donate organs. Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.</description><identifier>ISSN: 2197-3792</identifier><identifier>EISSN: 2196-8837</identifier><identifier>DOI: 10.1007/s40615-016-0260-x</identifier><identifier>PMID: 27352118</identifier><language>eng</language><publisher>Cham: Springer Science + Business Media</publisher><subject><![CDATA[Adolescent ; Adult ; African Americans ; African Americans - psychology ; African Americans - statistics & numerical data ; Aged ; Aged, 80 and over ; Attitude to Health - ethnology ; Biological organs ; Blood & organ donations ; Demographics ; Demography ; Dialysis ; Donations ; Donors ; Epidemiology ; Ethnicity ; Health status ; Hispanic Americans ; Humans ; Inequality ; Kidney transplantation ; Kidney Transplantation - statistics & numerical data ; Kidney transplants ; Living donors ; Male ; Medical history ; Medical waiting lists ; Medicine ; Medicine & Public Health ; Men ; Mental health ; Middle Aged ; Minority & ethnic groups ; Minority groups ; Minority Groups - psychology ; Minority Groups - statistics & numerical data ; Misconceptions ; Organ donation ; Organ donors ; Organ transplantation ; Outreach programs ; Pacific Islander people ; Perceptions ; Polls & surveys ; Quality of life ; Quality of Life - psychology ; Quality of Life Research ; Questionnaires ; Race ; Racial differences ; Racism ; Social Inequality ; Social Structure ; Socioeconomic Factors ; Surveys ; Surveys and Questionnaires ; Tissue and Organ Procurement - statistics & numerical data ; Transplantation ; Transplantation - psychology ; Transplants ; Young Adult]]></subject><ispartof>Journal of racial and ethnic health disparities, 2017-08, Vol.4 (4), p.580-586</ispartof><rights>W. Montague Cobb-NMA Health Institute 2016</rights><rights>W. Montague Cobb-NMA Health Institute 2016.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c394t-c010302f12250f392c4b04a8a7fe7007e67618f10d82c68992701b9462714fa93</citedby><cites>FETCH-LOGICAL-c394t-c010302f12250f392c4b04a8a7fe7007e67618f10d82c68992701b9462714fa93</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/48706651$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.proquest.com/docview/2932576247?pq-origsite=primo$$EHTML$$P50$$Gproquest$$H</linktohtml><link.rule.ids>314,780,784,12846,21394,21395,27344,27924,27925,30999,33611,33612,33774,34530,34531,43733,44115,58238,58471</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27352118$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Hinck, Bryan D.</creatorcontrib><creatorcontrib>Naelitz, Bryan D.</creatorcontrib><creatorcontrib>Jackson, Brielle</creatorcontrib><creatorcontrib>Howard, Mariah</creatorcontrib><creatorcontrib>Nowacki, Amy</creatorcontrib><creatorcontrib>Modlin, Charles S.</creatorcontrib><title>Assessing Transplant Attitudes: Understanding Minority Men’s Perspectives on the Multifarious Barriers to Organ Donation</title><title>Journal of racial and ethnic health disparities</title><addtitle>J. Racial and Ethnic Health Disparities</addtitle><addtitle>J Racial Ethn Health Disparities</addtitle><description>African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation—including the belief that they were too old or unhealthy to donate, for example—had lower general, physical, and mental health scores than those who did not (p = <0.0001). Minorities aware of the shortage for organs or who know a registered donor, an organ recipient, a dialysis patient, or someone on the waiting list were more willing to donate organs. Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.</description><subject>Adolescent</subject><subject>Adult</subject><subject>African Americans</subject><subject>African Americans - psychology</subject><subject>African Americans - statistics & numerical data</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Attitude to Health - ethnology</subject><subject>Biological organs</subject><subject>Blood & organ donations</subject><subject>Demographics</subject><subject>Demography</subject><subject>Dialysis</subject><subject>Donations</subject><subject>Donors</subject><subject>Epidemiology</subject><subject>Ethnicity</subject><subject>Health status</subject><subject>Hispanic Americans</subject><subject>Humans</subject><subject>Inequality</subject><subject>Kidney transplantation</subject><subject>Kidney Transplantation - statistics & numerical data</subject><subject>Kidney transplants</subject><subject>Living donors</subject><subject>Male</subject><subject>Medical history</subject><subject>Medical waiting lists</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Men</subject><subject>Mental health</subject><subject>Middle Aged</subject><subject>Minority & ethnic groups</subject><subject>Minority groups</subject><subject>Minority Groups - psychology</subject><subject>Minority Groups - statistics & numerical data</subject><subject>Misconceptions</subject><subject>Organ donation</subject><subject>Organ donors</subject><subject>Organ transplantation</subject><subject>Outreach programs</subject><subject>Pacific Islander people</subject><subject>Perceptions</subject><subject>Polls & surveys</subject><subject>Quality of life</subject><subject>Quality of Life - psychology</subject><subject>Quality of Life Research</subject><subject>Questionnaires</subject><subject>Race</subject><subject>Racial differences</subject><subject>Racism</subject><subject>Social Inequality</subject><subject>Social Structure</subject><subject>Socioeconomic Factors</subject><subject>Surveys</subject><subject>Surveys and Questionnaires</subject><subject>Tissue and Organ Procurement - statistics & numerical data</subject><subject>Transplantation</subject><subject>Transplantation - psychology</subject><subject>Transplants</subject><subject>Young Adult</subject><issn>2197-3792</issn><issn>2196-8837</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><sourceid>ALSLI</sourceid><sourceid>BHHNA</sourceid><sourceid>HEHIP</sourceid><sourceid>M2S</sourceid><recordid>eNp9kEtLw0AUhQdRrFR_gAtLwY2b6L13knksS_EFBTd1PaTppKS0SZ2bgP57p0YruHA1A_OdM4dPiEuEWwTQd5yCwiwBVAmQguT9SJwRWpUYI_Xx110nUlsaiAvmNQAgZZmV6lQMSMuMEM2ZGE2YPXNVr8bzkNe82-R1O560bdV2S8_n4qTMN-wvvs-heH24n0-fktnL4_N0MksKadM2KQBBApVIlEEpLRXpAtLc5Lr0Oo71Sis0JcLSUKGMtaQBFzZVpDEtcyuH4qbv3YXmrfPcum3Fhd_ENb7p2KEhpREBZUSv_6Drpgt1XOfISsq0olRHCnuqCA1z8KXbhWqbhw-H4Pb-XO_PRX9u78-9x8zou7lbbP3ykPixFQHqAY5P9cqH36__a73qQ2tum3AoTY0GpTKUnzR-gI0</recordid><startdate>20170801</startdate><enddate>20170801</enddate><creator>Hinck, Bryan D.</creator><creator>Naelitz, Bryan D.</creator><creator>Jackson, Brielle</creator><creator>Howard, Mariah</creator><creator>Nowacki, Amy</creator><creator>Modlin, Charles S.</creator><general>Springer Science + Business Media</general><general>Springer International Publishing</general><general>Springer Nature B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7QJ</scope><scope>7RV</scope><scope>7U4</scope><scope>7X7</scope><scope>7XB</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>ATCPS</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BHHNA</scope><scope>BHPHI</scope><scope>CCPQU</scope><scope>DWI</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>HEHIP</scope><scope>K9.</scope><scope>KB0</scope><scope>LD-</scope><scope>LD.</scope><scope>M0S</scope><scope>M2S</scope><scope>NAPCQ</scope><scope>PATMY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PYCSY</scope><scope>QXPDG</scope><scope>WZK</scope><scope>7X8</scope></search><sort><creationdate>20170801</creationdate><title>Assessing Transplant Attitudes</title><author>Hinck, Bryan D. ; Naelitz, Bryan D. ; Jackson, Brielle ; Howard, Mariah ; Nowacki, Amy ; Modlin, Charles S.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c394t-c010302f12250f392c4b04a8a7fe7007e67618f10d82c68992701b9462714fa93</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>African Americans</topic><topic>African Americans - psychology</topic><topic>African Americans - statistics & numerical data</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Attitude to Health - ethnology</topic><topic>Biological organs</topic><topic>Blood & organ donations</topic><topic>Demographics</topic><topic>Demography</topic><topic>Dialysis</topic><topic>Donations</topic><topic>Donors</topic><topic>Epidemiology</topic><topic>Ethnicity</topic><topic>Health status</topic><topic>Hispanic Americans</topic><topic>Humans</topic><topic>Inequality</topic><topic>Kidney transplantation</topic><topic>Kidney Transplantation - statistics & numerical data</topic><topic>Kidney transplants</topic><topic>Living donors</topic><topic>Male</topic><topic>Medical history</topic><topic>Medical waiting lists</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Men</topic><topic>Mental health</topic><topic>Middle Aged</topic><topic>Minority & ethnic groups</topic><topic>Minority groups</topic><topic>Minority Groups - 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Academic</collection><jtitle>Journal of racial and ethnic health disparities</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Hinck, Bryan D.</au><au>Naelitz, Bryan D.</au><au>Jackson, Brielle</au><au>Howard, Mariah</au><au>Nowacki, Amy</au><au>Modlin, Charles S.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Assessing Transplant Attitudes: Understanding Minority Men’s Perspectives on the Multifarious Barriers to Organ Donation</atitle><jtitle>Journal of racial and ethnic health disparities</jtitle><stitle>J. Racial and Ethnic Health Disparities</stitle><addtitle>J Racial Ethn Health Disparities</addtitle><date>2017-08-01</date><risdate>2017</risdate><volume>4</volume><issue>4</issue><spage>580</spage><epage>586</epage><pages>580-586</pages><issn>2197-3792</issn><eissn>2196-8837</eissn><abstract>African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation—including the belief that they were too old or unhealthy to donate, for example—had lower general, physical, and mental health scores than those who did not (p = <0.0001). Minorities aware of the shortage for organs or who know a registered donor, an organ recipient, a dialysis patient, or someone on the waiting list were more willing to donate organs. Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.</abstract><cop>Cham</cop><pub>Springer Science + Business Media</pub><pmid>27352118</pmid><doi>10.1007/s40615-016-0260-x</doi><tpages>7</tpages></addata></record> |
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subjects | Adolescent Adult African Americans African Americans - psychology African Americans - statistics & numerical data Aged Aged, 80 and over Attitude to Health - ethnology Biological organs Blood & organ donations Demographics Demography Dialysis Donations Donors Epidemiology Ethnicity Health status Hispanic Americans Humans Inequality Kidney transplantation Kidney Transplantation - statistics & numerical data Kidney transplants Living donors Male Medical history Medical waiting lists Medicine Medicine & Public Health Men Mental health Middle Aged Minority & ethnic groups Minority groups Minority Groups - psychology Minority Groups - statistics & numerical data Misconceptions Organ donation Organ donors Organ transplantation Outreach programs Pacific Islander people Perceptions Polls & surveys Quality of life Quality of Life - psychology Quality of Life Research Questionnaires Race Racial differences Racism Social Inequality Social Structure Socioeconomic Factors Surveys Surveys and Questionnaires Tissue and Organ Procurement - statistics & numerical data Transplantation Transplantation - psychology Transplants Young Adult |
title | Assessing Transplant Attitudes: Understanding Minority Men’s Perspectives on the Multifarious Barriers to Organ Donation |
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