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Assessing Transplant Attitudes: Understanding Minority Men’s Perspectives on the Multifarious Barriers to Organ Donation

African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear...

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Published in:Journal of racial and ethnic health disparities 2017-08, Vol.4 (4), p.580-586
Main Authors: Hinck, Bryan D., Naelitz, Bryan D., Jackson, Brielle, Howard, Mariah, Nowacki, Amy, Modlin, Charles S.
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description African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation—including the belief that they were too old or unhealthy to donate, for example—had lower general, physical, and mental health scores than those who did not (p =
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There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation—including the belief that they were too old or unhealthy to donate, for example—had lower general, physical, and mental health scores than those who did not (p = &lt;0.0001). Minorities aware of the shortage for organs or who know a registered donor, an organ recipient, a dialysis patient, or someone on the waiting list were more willing to donate organs. Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.</description><identifier>ISSN: 2197-3792</identifier><identifier>EISSN: 2196-8837</identifier><identifier>DOI: 10.1007/s40615-016-0260-x</identifier><identifier>PMID: 27352118</identifier><language>eng</language><publisher>Cham: Springer Science + Business Media</publisher><subject><![CDATA[Adolescent ; Adult ; African Americans ; African Americans - psychology ; African Americans - statistics & numerical data ; Aged ; Aged, 80 and over ; Attitude to Health - ethnology ; Biological organs ; Blood & organ donations ; Demographics ; Demography ; Dialysis ; Donations ; Donors ; Epidemiology ; Ethnicity ; Health status ; Hispanic Americans ; Humans ; Inequality ; Kidney transplantation ; Kidney Transplantation - statistics & numerical data ; Kidney transplants ; Living donors ; Male ; Medical history ; Medical waiting lists ; Medicine ; Medicine & Public Health ; Men ; Mental health ; Middle Aged ; Minority & ethnic groups ; Minority groups ; Minority Groups - psychology ; Minority Groups - statistics & numerical data ; Misconceptions ; Organ donation ; Organ donors ; Organ transplantation ; Outreach programs ; Pacific Islander people ; Perceptions ; Polls & surveys ; Quality of life ; Quality of Life - psychology ; Quality of Life Research ; Questionnaires ; Race ; Racial differences ; Racism ; Social Inequality ; Social Structure ; Socioeconomic Factors ; Surveys ; Surveys and Questionnaires ; Tissue and Organ Procurement - statistics & numerical data ; Transplantation ; Transplantation - psychology ; Transplants ; Young Adult]]></subject><ispartof>Journal of racial and ethnic health disparities, 2017-08, Vol.4 (4), p.580-586</ispartof><rights>W. 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Racial and Ethnic Health Disparities</addtitle><addtitle>J Racial Ethn Health Disparities</addtitle><description>African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric’s Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. 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Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.</description><subject>Adolescent</subject><subject>Adult</subject><subject>African Americans</subject><subject>African Americans - psychology</subject><subject>African Americans - statistics &amp; numerical data</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Attitude to Health - ethnology</subject><subject>Biological organs</subject><subject>Blood &amp; organ donations</subject><subject>Demographics</subject><subject>Demography</subject><subject>Dialysis</subject><subject>Donations</subject><subject>Donors</subject><subject>Epidemiology</subject><subject>Ethnicity</subject><subject>Health status</subject><subject>Hispanic Americans</subject><subject>Humans</subject><subject>Inequality</subject><subject>Kidney transplantation</subject><subject>Kidney Transplantation - statistics &amp; 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Racial and Ethnic Health Disparities</stitle><addtitle>J Racial Ethn Health Disparities</addtitle><date>2017-08-01</date><risdate>2017</risdate><volume>4</volume><issue>4</issue><spage>580</spage><epage>586</epage><pages>580-586</pages><issn>2197-3792</issn><eissn>2196-8837</eissn><abstract>African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants’ demographic information, medical history, professional background, and opinions regarding organ transplantation. 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Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.</abstract><cop>Cham</cop><pub>Springer Science + Business Media</pub><pmid>27352118</pmid><doi>10.1007/s40615-016-0260-x</doi><tpages>7</tpages></addata></record>
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subjects Adolescent
Adult
African Americans
African Americans - psychology
African Americans - statistics & numerical data
Aged
Aged, 80 and over
Attitude to Health - ethnology
Biological organs
Blood & organ donations
Demographics
Demography
Dialysis
Donations
Donors
Epidemiology
Ethnicity
Health status
Hispanic Americans
Humans
Inequality
Kidney transplantation
Kidney Transplantation - statistics & numerical data
Kidney transplants
Living donors
Male
Medical history
Medical waiting lists
Medicine
Medicine & Public Health
Men
Mental health
Middle Aged
Minority & ethnic groups
Minority groups
Minority Groups - psychology
Minority Groups - statistics & numerical data
Misconceptions
Organ donation
Organ donors
Organ transplantation
Outreach programs
Pacific Islander people
Perceptions
Polls & surveys
Quality of life
Quality of Life - psychology
Quality of Life Research
Questionnaires
Race
Racial differences
Racism
Social Inequality
Social Structure
Socioeconomic Factors
Surveys
Surveys and Questionnaires
Tissue and Organ Procurement - statistics & numerical data
Transplantation
Transplantation - psychology
Transplants
Young Adult
title Assessing Transplant Attitudes: Understanding Minority Men’s Perspectives on the Multifarious Barriers to Organ Donation
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